Below is a summary of our recent news. Click any post title or the read more link below any story to see more!
Horizon Pharma has just released top line results for the Phase III trial of Teprotumumab, a potential new treatment for thyroid eye disease. Detailed Phase III data will be submitted for publication in a peer-reviewed journal and presented at a medical congress later this year. Click this link to learn more: http://bit.ly/2ECfINj
Raymond Douglas, M.D., Ph.D., the study’s co-principal investigator, director of the orbital and thyroid eye disease program at Cedars-Sinai Medical Center, and a member of the GDATF's Physician Advisory Board stated: “In the study, patients treated with teprotumumab had an unprecedented reduction in proptosis [eye bulging], which is currently only treatable via surgery after the active disease has ended. If approved, teprotumumab would give physicians the first medicine shown to reduce proptosis during active thyroid eye disease, in addition to treating other painful symptoms.”
If you are in the Los Angeles area and would like to learn more about Graves' disease, pease join us for a special "Ask the Experts" session co-hosted by the American Association of Endocrine Surgeons and the Graves' Disease and Thyroid Foundation!
If you are in the Los Angeles/Santa Monica area, please save the date for Saturday, April 6th from 5:00-6:30 PM at the Fairmont Miramar Hotel! The GDATF is pleased to be partnering with the American Association of Endocrine Surgeons on a FREE patient education event in conjunction with the AAES Annual Meeting! More details and registration info to come!
Thank you for being a part of the Graves’ Disease and Thyroid Foundation’s patient community! This is a club that none of us wanted to join, but we’re thankful that you found us – and we hope that together we’ve been able to make your journey a little lighter. As 2018 draws to a close, we’d like to take a moment to share with you some of this year’s accomplishments – before we dive headfirst into 2019!
Our biggest milestone for the year was our Patient & Family Conference – “A Bridge to Wellness XX” – held June 14-17 in San Diego. The event featured two jam-packed days of stellar presentations on autoimmunity as well as all aspects of Graves’ disease: getting a diagnosis, treatment options, mental health issues, and living with thyroid eye disease. Breakout support group sessions gave patients and family members a chance to connect (many attendees had never met another Graves’ patient before), and there was plenty of social time to enjoy the great food and the beautiful scenery that San Diego has to offer! Many thanks to our event sponsors: Horizon Pharma, the Bell Charitable Foundation, and the County of San Diego Community Enhancement Grant Program for making this event possible. The presentations were recorded, and we are currently working on editing the content for posting online! A few additional highlights from around the country:
Statement from the Graves' Disease and Thyroid Foundation (GDATF) on the passing of President George H.W. Bush:
We were saddened to learn of the passing of Pres. George H.W. Bush, and extend our condolences to his family and friends.
With his diagnosis of Graves' disease in 1991, Pres. Bush not only raised the profile of Graves' disease in the public consciousness, but was also an example of how patients can persevere and lead happy, productive, lives. He inspired patients everywhere when he celebrated his 90th birthday with a parachute jump!
He was preceded in death by his wife of 73 years, First Lady Barbara Bush. Mrs. Bush - who herself was diagnosed with Graves' disease in 1989 - declined to celebrate her own 90th birthday with a parachute jump, quipping, “I'm too smart to jump out of a perfectly good plane."
Pres. Bush was known as a prolific letter writer. GDATF Founder and Chair Emeritus Nancy Hord Patterson, Ph.D. received a typewritten letter of support from Pres. and Mrs. Bush in 1992. ("We are pleased to lend our names to an organization that has done so much to increase the public awareness of Graves' disease. Thank you for extending to us the opportunity of being involved in this worthy endeavor..."). She has always been thankful for their kindness.