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#1 July 29, 2020 14:24:07

Kimberly
Online Facilitator
Registered: 2008-10-14
Posts: 4190
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Feedback on Online Events for 2020

With our in-person events on hold for the foreseeable future, we are looking to host an online event or speaker series that would benefit our patient community. (The content would be made available on YouTube for those unable to attend live.) We're looking for feedback on the format - do you have a preference? Please feel free to comment below, or hop over to Facebook or Twitter to take the poll.

One full day - 8 hours
Two half-days - 4 hours each
Four sessions - 2 hours each*
Six sessions - 90 minutes each**

*one per week over four weeks
*one per week over six weeks

Facebook Poll: https://www.facebook.com/events/1642048682736535/permalink/2663588513915875/

Twitter Poll: https://twitter.com/GDATF/status/1288579384178126848


Kimberly
GDATF Forum Facilitator

…through nature's inflexible grace, I'm learning to live…
– Dream Theater

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#2 Aug. 5, 2020 12:06:03

Kimberly
Online Facilitator
Registered: 2008-10-14
Posts: 4190
Profile  

Feedback on Online Events for 2020

Thanks to everyone who completed our survey regarding future online programming! Our community members overwhelmingly preferred to have a series of 90-minute webinars, rather one full day (or two half-days) of online programming. Two new poll questions…

What topics would you like to hear about?

Twitter: https://twitter.com/GDATF/status/1291078496123412481

Facebook:
https://www.facebook.com/events/1642048682736535/permalink/2669476706660389/


What is your preferred breakdown of presentations vs. Q&A?

Twitter: https://twitter.com/GDATF/status/1291079091077046272

Facebook: https://www.facebook.com/events/1642048682736535/permalink/2669478029993590/


Kimberly
GDATF Forum Facilitator

…through nature's inflexible grace, I'm learning to live…
– Dream Theater

Edited Kimberly (Aug. 5, 2020 12:07:47)

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#3 Aug. 7, 2020 11:55:55

aplicaciones
Registered: 2018-04-15
Posts: 2
Profile  

Feedback on Online Events for 2020

Hi-

I have TED and I would like to know if Kaiser Permanente in the U.S. have any provider that work with the drug Tepezza or what should I do if it doesn't cover it. I went to the Tepezza website and it doesn't give any information regarding Kaiser P. Can I pay out of my pocket, but have the provider administer me the drug? Thank you for any response.


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#4 Aug. 11, 2020 09:21:10

Kimberly
Online Facilitator
Registered: 2008-10-14
Posts: 4190
Profile  

Feedback on Online Events for 2020

Hello - The first step would be to get a specific diagnosis of TED from your provider and a determination as to whether this is the right course of treatment for you. The next step would be going through your insurance company - and if they don't cover, your doctor should be able to direct you to an assistance program.


Kimberly
GDATF Forum Facilitator

…through nature's inflexible grace, I'm learning to live…
– Dream Theater

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