Hi, I'm a 41 year old mom of 3 young kids. I was diagnosed with graves disease as a 18 year old collegiate gymnast, which brought my world crashing down for a few years due to the effects graves had on my lifestyle and training. I gained 40lbs (instead of losing), extreme fatigue and loss of sensation in my hands. After a year of suppression therapy, I underwent RAI at age 19.
Post RAI, I've been on the same dose of levothyroxine and liothinine for the greater part of 20 years, with exception of a year with a provider that would not continue my liothinine rx. I've had 3 healthy pregnancies during these 20 years that did not require any medication changes and I have felt great most of my adult life.
However, this past year, I've had my TSH and t4 levels continue to change. My TSH is low, and t4 is on the high end of normal.
I can barely get out of bed most days, I'm irritable and my body hurts everywhere. My hair is falling out, I'm always cold and when I do exercise at all, I'm spent for the next 2 days. I've gained 10 lbs since last summer and I'm a bit depressed over the loss of my ability to do anything without hurting or getting exhausted. My kids need me.
Has anyone else had fluctuations start so long after RAI and many years of being on the same medication doses?
I have an appointment with my endo this week, but is it possible for graves to recur this long after RAI?