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Living with Graves' Disease



Many people ask: “What can I do about my Graves’ disease”? When you feel helpless and powerless, a sense of hopelessness sets in. Although your Graves’ disease will not go away, there are many things you can do to have a greater sense of mastery in your life. What you eat, what you do, what you think and what you know – all of these things can affect your life.

Read how a student fought Graves' disease to see her dreams come back
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Medical Care

First and foremost, adequate health care is a Must. Select your physician with care. Ask Questions. Although your physician may not be able to spend hours with you, your questions deserve answers. If there are no answers (which in many instances there are none), you deserve that information, too – after all, this is a team effort, and you are the captain. Your medication is essential, as is regular monitoring of your thyroid hormone levels.  Excessive levels of thyroid hormone can cause symptoms of insomnia, anxiety, jitteriness, changes in libido, heat intolerance, fatigue, racing heart, and unexplained weight loss.  If your levels of thyroid hormone are too low, you will experience hypothyroid symptoms. These are slow heart rate, hair and nail changes, dry skin, sensitivity to cold, joint pains, hoarseness, weight gain, loss of appetite, difficulty concentrating, depression, constipation, changes in libido (sex drive), muscle weakness or muscle cramps, and puffy eyes. If you begin to notice any change in symptoms, contact your doctor; a simple blood test will clarify if your medication needs adjusting. You are not “bothering” the doctor.

Nutrition

There are a number of nutritional concepts with which you need to become familiar and keep in mind when you plan your meals. Weight control is usually important to people with Graves’ disease. Your thyroid controls metabolism, and you may now have a tendency to gain weight. Eating to reduce caloric intake while maintaining high nutrition requires more effort than you may have done in the past. Focus on fresh fruits and vegetables. These will give you the most vitamins and minerals for your efforts and offer the balance you need. The preservatives (“sodium”) in canned and frozen foods may contribute to edema. Swelling is frequently a problem for Graves’ patients; you may now need to be more aware of your total salt intake. People who are hypothyroid sometimes develop problems with an elevated total cholesterol. You may have to become aware of your fat intake. Fish and chicken will be better for you rather than excessive amounts of pork and beef. Limit rich sauces and cheeses. Learn about nutrition. There are many resources such as the American Heart Association and the American Diabetes Association with excellent, nutritional food plans. consultants. Fad diets are not healthy – avoid them.

Exercise

Once your hyperthyroidism is under control and your doctor has cleared you for exercise, you will feel better if you develop a regular activity program. No one expects you to be an Olympic athlete. Exercises that strengthen your heart and improve circulation and muscle tone are needed to keep your cardiovascular system functioning well and keep you physically fit. The emphasis on exercise for Graves’ patients needs to be on weight-bearing exercise. This type of exercise has the most benefit to maintaining bone density. Studies show that exercise reduces appetite and increases your energy level. Concentrate on activities you already know how to do, as well as learning new ones. Have a variety of physical activities to avoid boredom, as well as the limitations of weather. Walking continues to be the most overall beneficial physical activity, and it is available to everyone. If you can’t walk, bike or swim – rock! Vigorous rocking in a stable rocking chair uses all the muscles in the body!

Relaxation

Learning to relax refers to reducing the muscular tension in order to increase effective circulation, as well as mental calmness. It is not only an “attitude,” but a learnable skill. Relaxation is more than just “getting away”. It is a positive and satisfying experience that gives peace of mind. It is well documented that Graves’ disease is also a stress-related and stress-mediated illness. The “stress” is often simply a result of the fast-paced, action-packed lifestyle we lead. Relaxation may take many forms: learning new things, exercising, gardening, walking in the woods, creative activities, soft lighting, soft music, a bubble bath, a good book. Whatever is totally absorbing. If you are interested in some of the mental exercises to create peace of mind and relaxed bodies, there are many to choose from. You might prefer the systematic tension and letting go of specific muscle groups, known as progressive muscle relaxation (PMR), or you might like imagining beautiful scenes. There is considerable research being done on the effectiveness of mental imagery (visualization) and its effect on the immune system. Yoga, Tai Chi, self-hypnosis and meditation are all ways to practice relaxation and visualization. Relaxation exercises must be practiced daily. When you discover your favorite activities, plan to devote at least one half hour each day. You have to make a personal commitment to yourself. The National Institute of Mental Health says: “Remember, finding effective techniques for relaxation is not merely a pastime for the idle rich. It is essential for everyone’s physical and mental well-being.” Another phase of relaxation is developing the ability to pace yourself. As a rule, people with Graves’ are the type that are intense, fast-paced, and accustomed to doing many things at once, and at full speed ahead. This is not conducive to maintaining a balance. There is the tendency that when one is “having a good day” to try to finish up everything that has been left unattended. The result is utter exhaustion the next day. This can be avoided by pacing your activities to make every day a productive day.

Recent News

Recent Forum Posts

  • Graves antibodies, TED and levothyroxine

    March 20, 2019, 3:02 p.m.

    Hello and welcome - hopefully, those who have had RAI and also those who have been through eye surgery can...

  • Graves antibodies, TED and levothyroxine

    March 19, 2019, 10:11 a.m.

    Hello. I’m new to this group and based in the UK. I have read with interest posts on TED and surgery - I am...

  • Going off methimazole expectations

    March 19, 2019, 9:30 a.m.

    Hello - Both are antibody tests, but TSI measures stimulating antibodies only, while TRAb picks up all...

  • Going off methimazole expectations

    March 18, 2019, 10:32 a.m.

    Kimberly - could you explain more about the TSI and TRAb? I am still struggling with feeling...

  • Links between thyroid, cholesterol, diabetes

    March 8, 2019, 3:35 a.m.

    They still say further research is needed in that article. I hope someone's on it. haha

  • Feels like PMS all the time

    March 1, 2019, 2:39 p.m.

    Hi. I'm a blast from the past, and it's so good to see Kimberly still here and running this place. Thank you...

  • Nails

    March 1, 2019, 11:55 a.m.

    I did find this : https://www.ncbi.nlm.nih.gov/pubmed/29780134 and this:...

  • Nails

    March 1, 2019, 11:25 a.m.

    i have had the same thing on my left big toenail since Graves began, even when on methimazole for the first 6...

  • Nails

    March 1, 2019, 8:17 a.m.

    Hello and welcome - hopefully, others here can chime in with their experiences. I do know that being hyper or...

  • Orbital Decompression

    March 1, 2019, 4:15 a.m.

    It is not as bad as you are anticipating. You might have two uncomfortable postop days. If you do not do it...

  • Nails

    March 1, 2019, 3:51 a.m.

    Has anyone had any trouble with the finger nails and toe nails. I had my thyroid removed in 2007 after a...

  • Feels like PMS all the time

    Feb. 28, 2019, 7:33 p.m.

    I lost up to 20 pounds over several years before a doctor finally suspected thyroid problems and began the...

  • Orbital Decompression

    Feb. 28, 2019, 4:05 p.m.

    Hello - I've not had an OD, but we've heard many success stories from patients who have. Having an...

  • Orbital Decompression

    Feb. 28, 2019, 10:21 a.m.

    Hi all - I am getting ready to schedule the orbital decompression and I am scared to death - almost scared...

  • Feels like PMS all the time

    Feb. 25, 2019, 8:41 a.m.

    Hello - Like Liz1967, I've not heard of this as a side effect of levothyroxine. Have you started or stopped...

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