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Links



Other health organizations:

American Thyroid Association (ATA)  

American Association of Clinical Endocrinologists (AACE)  

American Association of Endocrine Surgeons  

The Endocrine Society  

The Hormone Health Network

American Autoimmune Related Diseases Associations (AARDA)

The Mayo Clinic - Health Information  

The Cleveland Clinic - Health Information

EUGOGO - European Group on Graves' Orbitopathy

International Thyroid Eye Disease Society

Red Hot Mamas:  Menopause Education and Support 

National Suicide Prevention Lifeline 

International Association for Suicide Prevention 

International Thyroid Patient Groups

Thyroid Federation International

The Thyroid Federation International (TFI) was established in Toronto in 1995, and is now registered in Sweden. This group is a network of patient support organizations from many countries, including Europe, North and South America, Australia, and Japan.  Click here for a full listing of members.

Thyroid Cancer:

  • The Light of Life Foundation was established in the spring of 1997 by Joan Shey, a patient herself. The mission of the foundation (a 501(c)(3) non-profit organization) is to improve the quality of life of thyroid cancer patients through continual education of the lay public and the medical community, and by promoting research and development to improve thyroid cancer care. To contact the Light of Life Foundation or Joan Shey, visit their website: Click here.
  • ThyCa: Thyroid Cancer Survivors' Association, a national non-profit 501 C(3) for thyroid cancer survivors, family members, and healthcare professionals. They are dedicated to support, education, and communication for thyroid cancer survivors, their families and friends. For more information from ThyCa, visit their website: Click here.

Patient Advocate Foundation (PAF), a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases. Visit their website: Patient Advocate Foundation.

Government

National Institutes of Health (NIH)

NIH News - Individuals who want to participate in research studies now can connect online with researchers nationwide through the first disease-neutral, volunteer recruitment registry. More details >>

Recent News

Recent Forum Posts

  • Patient Education Event in Seattle on June 30th!

    May 21, 2019, 2:27 p.m.

    Please join us for a special patient education event at the Crowne Plaza Seattle Airport! Hear the latest...

  • Mood Swing

    May 17, 2019, 6:19 p.m.

    Hello - This video from Dr. Ira Lesser will hopefully shed some light behind the *why* of the mood issues....

  • Mood Swing

    May 15, 2019, 7:45 p.m.

    Hi all, I love being around people. I love to smile and being helpful as much as I could. However, often...

  • t3 and t4 in range, TSH low

    May 14, 2019, 4:32 p.m.

    I never had a normal TSH when I was on methimazole. When my T4 and T3 were in the normal range, it was always...

  • t3 and t4 in range, TSH low

    May 13, 2019, 12:03 p.m.

    There are lots of drugs beside anti-thyroid drugs that can cause hair loss. This article lists some of them,...

  • t3 and t4 in range, TSH low

    May 13, 2019, 8:41 a.m.

    Yes, I'm on methimazole. 5mg daily. I just hoped the hair loss would stop as my labs got more in range. The...

  • t3 and t4 in range, TSH low

    May 11, 2019, 6:06 a.m.

    Are you on methimazole? It is a drug and one of its side effects is hair loss, irregardless of thyroid...

  • t3 and t4 in range, TSH low

    May 10, 2019, 7:16 a.m.

    Hi all, Just wondered if anyone has had the same thing happen, t3 and t4 are both in range and have been...

  • Change in medication

    May 8, 2019, 9:34 a.m.

    Hello - I've not taken Cytomel (and am not a doc), but based on the prescribing info, it looks like the...

  • Change in medication

    May 7, 2019, 2:28 a.m.

    I am not a doctor, nor would I suggest ignoring your physicians advice, but in reviewing the warnings on...

  • Change in medication

    May 6, 2019, 5:21 p.m.

    So I have had Graves' disease since 2012 and it took about a year to find my sweet spot with a combination of...

  • Graves Disease and hair loss

    May 2, 2019, 6:26 p.m.

    Hello and welcome - We're fellow patients here, so can't give advice on medications. In general, the active...

  • Graves Disease and hair loss

    May 2, 2019, 11:14 a.m.

    Hi everyone, DX with Graves in November, on methimazole since December. all labs were within...

  • Thyroidoctomy after RAI ??

    April 30, 2019, 4:04 p.m.

    RAI can start the eye disease in some people. Yet sometimes the eye disease occurs after thyroidectomy, altho...

  • Thyroidoctomy after RAI ??

    April 30, 2019, 3:18 p.m.

    Thnx for ur reply So u think that thyroidoctomy for me now is useless ?? My thyroid now is dead and my...

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