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Links



Other health organizations:

American Thyroid Association (ATA)  

American Association of Clinical Endocrinologists (AACE)  

American Association of Endocrine Surgeons  

The Endocrine Society  

The Hormone Health Network

American Autoimmune Related Diseases Associations (AARDA)

The Mayo Clinic - Health Information  

The Cleveland Clinic - Health Information

EUGOGO - European Group on Graves' Orbitopathy

International Thyroid Eye Disease Society

Red Hot Mamas:  Menopause Education and Support 

National Suicide Prevention Lifeline 

International Association for Suicide Prevention 

International Thyroid Patient Groups

Thyroid Federation International

The Thyroid Federation International (TFI) was established in Toronto in 1995, and is now registered in Sweden. This group is a network of patient support organizations from many countries, including Europe, North and South America, Australia, and Japan.  Click here for a full listing of members.

Thyroid Cancer:

  • The Light of Life Foundation was established in the spring of 1997 by Joan Shey, a patient herself. The mission of the foundation (a 501(c)(3) non-profit organization) is to improve the quality of life of thyroid cancer patients through continual education of the lay public and the medical community, and by promoting research and development to improve thyroid cancer care. To contact the Light of Life Foundation or Joan Shey, visit their website: Click here.
  • ThyCa: Thyroid Cancer Survivors' Association, a national non-profit 501 C(3) for thyroid cancer survivors, family members, and healthcare professionals. They are dedicated to support, education, and communication for thyroid cancer survivors, their families and friends. For more information from ThyCa, visit their website: Click here.

Patient Advocate Foundation (PAF), a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases. Visit their website: Patient Advocate Foundation.

Government

National Institutes of Health (NIH)

NIH News - Individuals who want to participate in research studies now can connect online with researchers nationwide through the first disease-neutral, volunteer recruitment registry. More details >>

Recent News

Recent Forum Posts

  • What do you think of this theory?

    June 18, 2021, 4:39 p.m.

    (Edited) Hello - Thanks for being flexible on the username to help us avoid confusion with our other admin! I...

  • What do you think of this theory?

    June 17, 2021, 1:57 p.m.

    https://pubmed.ncbi.nlm.nih.gov/31482765/ 2019 study, another perspective on ATD treatment. Note especially...

  • What do you think of this theory?

    June 17, 2021, 12:32 p.m.

    Hi Kimberly—thanks for your reply June 11. Per your advice I’ll update my screen name, ellenb. Do I...

  • What do you think of this theory?

    June 11, 2021, 3:52 p.m.

    Hello and welcome! First, do you mind if we work with you to update your screen name to avoid confusion with...

  • What do you think of this theory?

    June 10, 2021, 6:39 p.m.

    Gianna— Hi, I'm trying to decide on treatment for Graves. Can you tell me— how was your...

  • What do you think of this theory?

    June 6, 2021, 10:10 a.m.

    Hi Sue, and hello everyone! This is my first ever post and I'm happy to be here! I was diagnosed with Grave's...

  • What do you think of this theory?

    June 6, 2021, 8:48 a.m.

    Thanks for the links, Kimberly….. I'll go check them out right now. Actually I don't have celiac...

  • What do you think of this theory?

    June 4, 2021, 4:59 p.m.

    Great to see you! I've not seen research on gluten intolerance and absorption, but there *have* been studies...

  • METHIMAZOLE long term??

    June 4, 2021, 11:47 a.m.

    Hi Conky, I have been on methimazole long term. I was diagnosed in 2013 and in 2019 my trabs was finally...

  • What do you think of this theory?

    June 4, 2021, 9:08 a.m.

    Wow - thank you for that info. I really know very little about mast cells and histamine but it's definitely...

  • What do you think of this theory?

    June 4, 2021, 4:03 a.m.

    This makes sense. Mast cells, which secrete histamine, affect T3 and gluten intolerance also has a histamine...

  • What do you think of this theory?

    June 3, 2021, 4:57 p.m.

    Been a looooooong time since I posted…. so grateful Kimberly is still here keeping this board alive!...

  • New TED diagnosis

    June 1, 2021, 6:45 p.m.

    Hello - I've not heard of patients using TEPEZZA (TM) *just* for swelling, but you might also check out our...

  • How do I support and rebuilt with my partner after years of Graves?

    June 1, 2021, 6:41 p.m.

    Hello and welcome - hopefully, others will chime in here, and you might also check out our Facebook group,...

  • Thyroid and soy

    June 1, 2021, 6:36 p.m.

    Hello and welcome - I think the concern with soy is more about its impact on absorption when you take your...

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