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Links



Other health organizations:

American Thyroid Association (ATA)  

American Association of Clinical Endocrinologists (AACE)  

American Association of Endocrine Surgeons  

The Endocrine Society  

The Hormone Health Network

American Autoimmune Related Diseases Associations (AARDA)

The Mayo Clinic - Health Information  

The Cleveland Clinic - Health Information

EUGOGO - European Group on Graves' Orbitopathy

International Thyroid Eye Disease Society

Red Hot Mamas:  Menopause Education and Support 

National Suicide Prevention Lifeline 

International Association for Suicide Prevention 

International Thyroid Patient Groups

Thyroid Federation International

The Thyroid Federation International (TFI) was established in Toronto in 1995, and is now registered in Sweden. This group is a network of patient support organizations from many countries, including Europe, North and South America, Australia, and Japan.  Click here for a full listing of members.

Thyroid Cancer:

  • The Light of Life Foundation was established in the spring of 1997 by Joan Shey, a patient herself. The mission of the foundation (a 501(c)(3) non-profit organization) is to improve the quality of life of thyroid cancer patients through continual education of the lay public and the medical community, and by promoting research and development to improve thyroid cancer care. To contact the Light of Life Foundation or Joan Shey, visit their website: Click here.
  • ThyCa: Thyroid Cancer Survivors' Association, a national non-profit 501 C(3) for thyroid cancer survivors, family members, and healthcare professionals. They are dedicated to support, education, and communication for thyroid cancer survivors, their families and friends. For more information from ThyCa, visit their website: Click here.

Patient Advocate Foundation (PAF), a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases. Visit their website: Patient Advocate Foundation.

Government

National Institutes of Health (NIH)

NIH News - Individuals who want to participate in research studies now can connect online with researchers nationwide through the first disease-neutral, volunteer recruitment registry. More details >>

Recent News

Recent Forum Posts

  • Methimazole side effect - terrible joint pain

    Jan. 22, 2020, 7:11 p.m.

    Hi hmrichards100, I had severe joint pain in my hands and knees when I was on methimazole after my first...

  • FDA Approves Tepezza (teprotumumab-trbw)

    Jan. 22, 2020, 12:52 p.m.

    FAQ with additional information:...

  • FDA Approves Tepezza (teprotumumab-trbw)

    Jan. 21, 2020, 1:22 p.m.

    The FDA has approved Tepezza (teprotumumab-trbw) for the treatment of adults with thyroid eye disease. Wiley...

  • Hello and thank you

    Jan. 19, 2020, 9:35 a.m.

    thank you for sharing!!! and congrats!

  • On ATD two years-plus?

    Jan. 17, 2020, 6:32 a.m.

    Thanks for the clarification Kimberly.

  • On ATD two years-plus?

    Jan. 16, 2020, 3:49 p.m.

    Thanks for checking in! You hear a couple of different definitions of remission. One involves going 12 months...

  • Hello and thank you

    Jan. 15, 2020, 8:43 a.m.

    Wonderful news - thanks for the update!

  • On ATD two years-plus?

    Jan. 15, 2020, 7:18 a.m.

    hockey_coach My story on Tapazole for 6 years. https://www.gdatf.org/forum/topic/42723/ Thanks for sharing...

  • On ATD two years-plus?

    Jan. 14, 2020, 7:36 p.m.

    My story on Tapazole for 6 years. https://www.gdatf.org/forum/topic/42723/

  • Hello and thank you

    Jan. 14, 2020, 7:24 p.m.

    I should have been updating this thread over the years. It was this forum that made me aware there is success...

  • Thyroid problems causing "insect bites"?

    Jan. 13, 2020, 9:54 a.m.

    Could be a contact, food or even inhalant allergy. If the eruptions skip your trunk (areas not covered by...

  • Thyroid problems causing "insect bites"?

    Jan. 13, 2020, 9:02 a.m.

    Wow, that is frustrating! Hopefully, others here will chime in. I've heard of hives with hyperthyroidism or...

  • Thyroid problems causing "insect bites"?

    Jan. 12, 2020, 7:29 p.m.

    For the past few weeks I've been finding what seem to be insect bites on my hands, arms, legs, and shoulders....

  • Diet

    Jan. 8, 2020, 2:16 p.m.

    Thank you! My endo said I definitely have Graves and has my blood checked every 3 weeks watching my levels. I...

  • Diet

    Jan. 7, 2020, 5 p.m.

    Hello and welcome - if you have a definite diagnosis of Graves', hopefully, your doctor has tested your...

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