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Links



Other health organizations:

American Thyroid Association (ATA)  

American Association of Clinical Endocrinologists (AACE)  

American Association of Endocrine Surgeons  

The Endocrine Society  

The Hormone Health Network

American Autoimmune Related Diseases Associations (AARDA)

The Mayo Clinic - Health Information  

The Cleveland Clinic - Health Information

EUGOGO - European Group on Graves' Orbitopathy

International Thyroid Eye Disease Society

Red Hot Mamas:  Menopause Education and Support 

National Suicide Prevention Lifeline 

International Association for Suicide Prevention 

International Thyroid Patient Groups

Thyroid Federation International

The Thyroid Federation International (TFI) was established in Toronto in 1995, and is now registered in Sweden. This group is a network of patient support organizations from many countries, including Europe, North and South America, Australia, and Japan.  Click here for a full listing of members.

Thyroid Cancer:

  • The Light of Life Foundation was established in the spring of 1997 by Joan Shey, a patient herself. The mission of the foundation (a 501(c)(3) non-profit organization) is to improve the quality of life of thyroid cancer patients through continual education of the lay public and the medical community, and by promoting research and development to improve thyroid cancer care. To contact the Light of Life Foundation or Joan Shey, visit their website: Click here.
  • ThyCa: Thyroid Cancer Survivors' Association, a national non-profit 501 C(3) for thyroid cancer survivors, family members, and healthcare professionals. They are dedicated to support, education, and communication for thyroid cancer survivors, their families and friends. For more information from ThyCa, visit their website: Click here.

Patient Advocate Foundation (PAF), a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases. Visit their website: Patient Advocate Foundation.

Government

National Institutes of Health (NIH)

NIH News - Individuals who want to participate in research studies now can connect online with researchers nationwide through the first disease-neutral, volunteer recruitment registry. More details >>

Recent News

Recent Forum Posts

  • Graves antibodies, TED and levothyroxine

    March 20, 2019, 3:02 p.m.

    Hello and welcome - hopefully, those who have had RAI and also those who have been through eye surgery can...

  • Graves antibodies, TED and levothyroxine

    March 19, 2019, 10:11 a.m.

    Hello. I’m new to this group and based in the UK. I have read with interest posts on TED and surgery - I am...

  • Going off methimazole expectations

    March 19, 2019, 9:30 a.m.

    Hello - Both are antibody tests, but TSI measures stimulating antibodies only, while TRAb picks up all...

  • Going off methimazole expectations

    March 18, 2019, 10:32 a.m.

    Kimberly - could you explain more about the TSI and TRAb? I am still struggling with feeling...

  • Links between thyroid, cholesterol, diabetes

    March 8, 2019, 3:35 a.m.

    They still say further research is needed in that article. I hope someone's on it. haha

  • Feels like PMS all the time

    March 1, 2019, 2:39 p.m.

    Hi. I'm a blast from the past, and it's so good to see Kimberly still here and running this place. Thank you...

  • Nails

    March 1, 2019, 11:55 a.m.

    I did find this : https://www.ncbi.nlm.nih.gov/pubmed/29780134 and this:...

  • Nails

    March 1, 2019, 11:25 a.m.

    i have had the same thing on my left big toenail since Graves began, even when on methimazole for the first 6...

  • Nails

    March 1, 2019, 8:17 a.m.

    Hello and welcome - hopefully, others here can chime in with their experiences. I do know that being hyper or...

  • Orbital Decompression

    March 1, 2019, 4:15 a.m.

    It is not as bad as you are anticipating. You might have two uncomfortable postop days. If you do not do it...

  • Nails

    March 1, 2019, 3:51 a.m.

    Has anyone had any trouble with the finger nails and toe nails. I had my thyroid removed in 2007 after a...

  • Feels like PMS all the time

    Feb. 28, 2019, 7:33 p.m.

    I lost up to 20 pounds over several years before a doctor finally suspected thyroid problems and began the...

  • Orbital Decompression

    Feb. 28, 2019, 4:05 p.m.

    Hello - I've not had an OD, but we've heard many success stories from patients who have. Having an...

  • Orbital Decompression

    Feb. 28, 2019, 10:21 a.m.

    Hi all - I am getting ready to schedule the orbital decompression and I am scared to death - almost scared...

  • Feels like PMS all the time

    Feb. 25, 2019, 8:41 a.m.

    Hello - Like Liz1967, I've not heard of this as a side effect of levothyroxine. Have you started or stopped...

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