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Links



Other health organizations:

American Thyroid Association (ATA)  

American Association of Clinical Endocrinologists (AACE)  

American Association of Endocrine Surgeons  

The Endocrine Society  

The Hormone Health Network

American Autoimmune Related Diseases Associations (AARDA)

The Mayo Clinic - Health Information  

The Cleveland Clinic - Health Information

EUGOGO - European Group on Graves' Orbitopathy

International Thyroid Eye Disease Society

Red Hot Mamas:  Menopause Education and Support 

National Suicide Prevention Lifeline 

International Association for Suicide Prevention 

International Thyroid Patient Groups

Thyroid Federation International

The Thyroid Federation International (TFI) was established in Toronto in 1995, and is now registered in Sweden. This group is a network of patient support organizations from many countries, including Europe, North and South America, Australia, and Japan.  Click here for a full listing of members.

Thyroid Cancer:

  • The Light of Life Foundation was established in the spring of 1997 by Joan Shey, a patient herself. The mission of the foundation (a 501(c)(3) non-profit organization) is to improve the quality of life of thyroid cancer patients through continual education of the lay public and the medical community, and by promoting research and development to improve thyroid cancer care. To contact the Light of Life Foundation or Joan Shey, visit their website: Click here.
  • ThyCa: Thyroid Cancer Survivors' Association, a national non-profit 501 C(3) for thyroid cancer survivors, family members, and healthcare professionals. They are dedicated to support, education, and communication for thyroid cancer survivors, their families and friends. For more information from ThyCa, visit their website: Click here.

Patient Advocate Foundation (PAF), a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases. Visit their website: Patient Advocate Foundation.

Government

National Institutes of Health (NIH)

NIH News - Individuals who want to participate in research studies now can connect online with researchers nationwide through the first disease-neutral, volunteer recruitment registry. More details >>

Recent News

Recent Forum Posts

  • Getting regulated after thyroidectomy

    June 17, 2020, 4:49 p.m.

    This is great news - thanks for the update!

  • Getting regulated after thyroidectomy

    June 17, 2020, 2:06 p.m.

    Thank you for all the great info and support. I DID start feeling better Saturday, which was 4 days after...

  • Getting regulated after thyroidectomy

    June 12, 2020, 6:11 p.m.

    Hello - as Liz1967 noted, your body needs some time to heal, and you will need some time (a few weeks) to...

  • Thyroid Cancer

    June 12, 2020, 6:04 p.m.

    Hello - For patients who are considered low risk, RAI is not always recommended after thyroidectomy. Your...

  • Getting regulated after thyroidectomy

    June 12, 2020, 10:43 a.m.

    Liz, Thank you for your informative post. They didn't tell me not to take calcium within four hours of my...

  • Getting regulated after thyroidectomy

    June 11, 2020, 1:35 p.m.

    Do not take any calcium within 4 hours of taking your thyroid replacement. It interferes with absorption. You...

  • Getting regulated after thyroidectomy

    June 11, 2020, 8:59 a.m.

    I had my thyroid removed on June 3 rd and felt normal again for about 4 days, then started to decline. I've...

  • Thyroid Cancer

    June 11, 2020, 8:54 a.m.

    Thank you for your encouragement! I really appreciate it.

  • Thyroid Cancer

    June 10, 2020, 4:33 a.m.

    This is one of the major reasons to choose a thyroidectomy as Graves patients have a higher risk for...

  • Thyroid Cancer

    June 9, 2020, 1:39 p.m.

    I am one week out of choosing a Thyroidectomy. I was diagnosed with Graves in February. Today, I went in for...

  • New to this and need advice!!

    May 21, 2020, 8:48 a.m.

    Hi Kelly, It took a long time for me to get to the right MMI doseage. At one point I had to be checked once a...

  • New to this and need advice!!

    May 20, 2020, 6:43 p.m.

    Hello and welcome - The experience with methimazole is very individual. Many patients end up doing well on a...

  • Newly Diagnosed and not doing well

    May 20, 2020, 6:39 p.m.

    Hello and welcome - You might also try the PM feature, as members don't always check back here once they are...

  • New to this and need advice!!

    May 20, 2020, 5:55 p.m.

    It is hard to keep levels where you want them on methimazole. It requires frequent monitoring and dose...

  • Newly Diagnosed and not doing well

    May 17, 2020, 2:02 p.m.

    geckomama Hi all, Thank you for the nice and detailed replies. Yes, I am on methimazole and propranolol....

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