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Links



Other health organizations:

American Thyroid Association (ATA)  

American Association of Clinical Endocrinologists (AACE)  

American Association of Endocrine Surgeons  

The Endocrine Society  

The Hormone Health Network

American Autoimmune Related Diseases Associations (AARDA)

The Mayo Clinic - Health Information  

The Cleveland Clinic - Health Information

EUGOGO - European Group on Graves' Orbitopathy

International Thyroid Eye Disease Society

Red Hot Mamas:  Menopause Education and Support 

National Suicide Prevention Lifeline 

International Association for Suicide Prevention 

International Thyroid Patient Groups

Thyroid Federation International

The Thyroid Federation International (TFI) was established in Toronto in 1995, and is now registered in Sweden. This group is a network of patient support organizations from many countries, including Europe, North and South America, Australia, and Japan.  Click here for a full listing of members.

Thyroid Cancer:

  • The Light of Life Foundation was established in the spring of 1997 by Joan Shey, a patient herself. The mission of the foundation (a 501(c)(3) non-profit organization) is to improve the quality of life of thyroid cancer patients through continual education of the lay public and the medical community, and by promoting research and development to improve thyroid cancer care. To contact the Light of Life Foundation or Joan Shey, visit their website: Click here.
  • ThyCa: Thyroid Cancer Survivors' Association, a national non-profit 501 C(3) for thyroid cancer survivors, family members, and healthcare professionals. They are dedicated to support, education, and communication for thyroid cancer survivors, their families and friends. For more information from ThyCa, visit their website: Click here.

Patient Advocate Foundation (PAF), a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases. Visit their website: Patient Advocate Foundation.

Government

National Institutes of Health (NIH)

NIH News - Individuals who want to participate in research studies now can connect online with researchers nationwide through the first disease-neutral, volunteer recruitment registry. More details >>

Recent News

Recent Forum Posts

  • 20 years post RAI, suddenly hyper on same dose Syn

    April 8, 2021, 12:26 p.m.

    Hello and welcome - as you noted, patients do often need tweaks in dosage as they age. Another thought is...

  • Graves Disease and Radioactive Iodine Treatment

    April 7, 2021, 1:36 p.m.

    That's Great Samantha. Good Luck with school!

  • New TED diagnosis

    April 7, 2021, 1:22 p.m.

    Are they treating your thyroid? TED doesn't just happen by itself. It's usually related to issues such as...

  • 20 years post RAI, suddenly hyper on same dose Syn

    April 7, 2021, 1:18 p.m.

    Graves diagnosis 1997, age 37, tx RAI. After adjustment period, Synthroid level stable with brief periods of...

  • New TED diagnosis

    April 1, 2021, 10:48 a.m.

    Just a note that this is very individual. The GDATF hosted a recent webinar on long-term use of antithyroid...

  • New TED diagnosis

    March 31, 2021, 1:43 p.m.

    You still have a thyroid which could at any time randomly chug out more hormone, or less, overriding the...

  • Graves and glucose

    March 31, 2021, 2:20 a.m.

    Hi Kimberly, When I was first diagnosed with hyperthyroidism my fasting glucose was a bit on the high side...

  • New TED diagnosis

    March 30, 2021, 8:28 p.m.

    Thank you so much for your response. I have had a recent CT scan of the orbits which found increased orbital...

  • Graves and glucose

    March 23, 2021, 3:20 p.m.

    Hello and welcome - Graves' disease (and all that comes with it) is definitely overwhelming. The key for now...

  • TED not getting better

    March 21, 2021, 9:36 a.m.

    Thank you all for the advice and kind words. A doctor did mention Tepezza to me, however they didn't think I...

  • TED not getting better

    March 21, 2021, 3:48 a.m.

    Tepezza, which is given as a series of infusions, does work. I have a friend whose TED course has been very...

  • Graves and glucose

    March 20, 2021, 9:40 a.m.

    Hi everyone, I’m new here. To give you some quick background - I was diagnosed with Graves following 2...

  • New TED diagnosis

    March 20, 2021, 4:03 a.m.

    You will need to be followed by an oculoplastic surgeon familiar with Graves. At each visit, pressures should...

  • New TED diagnosis

    March 19, 2021, 7:34 p.m.

    Hello and welcome - hopefully, you will get some responses here, but you might also check out our Facebook...

  • New TED diagnosis

    March 17, 2021, 1:45 p.m.

    Recently diagnosed with early stages of TED. Doctor advised Selenium, low sodium diet, sleeping head...

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