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About GDATF



Message from our Founder

NancyI would like to welcome you to the GDATF website. I believe the information you find here will help you better understand Graves’ disease and other thyroid related illnesses.

Established in 1990 as the National Graves' Disease Foundation, the Graves’ Disease and Thyroid Foundation is the leading source of help and hope for people with Graves’ disease and other thyroid related disorders.  We provide education and support for patients, family members, caregivers, friends and healthcare professionals.

The Foundation is a 501 C(3) tax-exempt non-profit international charitable organization. GDATF has helped thousands of patients better understand the symptoms and treatment programs for Graves' disease.

Diagnosis and treatment of Graves’ disease can cause stress, confusion, and even fear of what the future holds for you and your family. The Graves’ Disease and Thyroid Foundation’s mission is to provide patient services, public education, professional education, and to fund research. Patient programs include a toll-free hotline that provides individual counseling, physician referral, and a bulletin board where anyone can ask questions about the disease. The Graves' Disease and Thyroid Foundation offers support groups that provide educational, psychological and emotional assistance to Graves' patients and family members.

On a personal note, when I was initially diagnosed, I thought Graves’ would be something to be treated, take the medicine, and get on with life. As many of you have discovered, this is NOT always the case. When it quickly became a struggle, I began to look for information, and for people to talk to that had faced the same concerns. When this proved impossible, I began an effort to start this Foundation. With the support of my Endocrinologist and Reconstructive surgeon, I was led to medical experts both nationally and internationally who were most willing to share their expertise in treating Graves’. They have kept us abreast of new research that is searching for the cause and cure for Graves’. Through these years, I have been honored to join hands with many dedicated volunteers who believe that the Foundation can educate, encourage and empower patients and caregivers to improve the quality of their lives.

Please visit our Forum (formerly called the Online Bulletin Board Support Group) where patients ask and respond to others questions on a myriad of subjects. Foundation facilitators monitor these posts and offer valuable insights on the topics discussed. Our Informational Bulletins are now posted on the web under About ==>About Graves' Disease==>Patient Education. You can download and read them online or print them from your personal computer. We are honored to have Dr. Terry Smith serve as Chief Medical & Scientific Officer with his knowledge and expertise on Graves' disease.

The Foundation has embarked on a major fundraising campaign so we can reach the thousands of others seeking help and fund research. Special thanks go to Kathleen and Steve Flynn for their philanthropic support to the Foundation. Recently, their Bell Charitable Foundation awarded us the largest gift ever to provide the seed money to make our dreams a reality.

However, in order to achieve these goals we need the generosity of donors like you! I encourage you to help us make a difference in the lives of those with Graves’ through this Website. Start today by making an online donation. If you become a member you will receive free patient education materials, our newsletter, and discounts at national meetings.

Whether you are living with Graves’ disease yourself, know someone who is, or simply trying to gather useful information, you have a unique opportunity to positively impact the lives of other patients including children affected by Graves’ disease.

The Foundation is expanding patient programs and needs individuals who want to give something back to their community. Are you interested in becoming a GDATF volunteer? Help us increase public awareness in your own community by starting a support group, or organizing a fundraiser for GDATF. Call us at 877-643-3123 or e-mail us at [email protected] for more details.

Together we can make a difference!

Recent News

Recent Forum Posts

  • Graves antibodies, TED and levothyroxine

    March 20, 2019, 3:02 p.m.

    Hello and welcome - hopefully, those who have had RAI and also those who have been through eye surgery can...

  • Graves antibodies, TED and levothyroxine

    March 19, 2019, 10:11 a.m.

    Hello. I’m new to this group and based in the UK. I have read with interest posts on TED and surgery - I am...

  • Going off methimazole expectations

    March 19, 2019, 9:30 a.m.

    Hello - Both are antibody tests, but TSI measures stimulating antibodies only, while TRAb picks up all...

  • Going off methimazole expectations

    March 18, 2019, 10:32 a.m.

    Kimberly - could you explain more about the TSI and TRAb? I am still struggling with feeling...

  • Links between thyroid, cholesterol, diabetes

    March 8, 2019, 3:35 a.m.

    They still say further research is needed in that article. I hope someone's on it. haha

  • Feels like PMS all the time

    March 1, 2019, 2:39 p.m.

    Hi. I'm a blast from the past, and it's so good to see Kimberly still here and running this place. Thank you...

  • Nails

    March 1, 2019, 11:55 a.m.

    I did find this : https://www.ncbi.nlm.nih.gov/pubmed/29780134 and this:...

  • Nails

    March 1, 2019, 11:25 a.m.

    i have had the same thing on my left big toenail since Graves began, even when on methimazole for the first 6...

  • Nails

    March 1, 2019, 8:17 a.m.

    Hello and welcome - hopefully, others here can chime in with their experiences. I do know that being hyper or...

  • Orbital Decompression

    March 1, 2019, 4:15 a.m.

    It is not as bad as you are anticipating. You might have two uncomfortable postop days. If you do not do it...

  • Nails

    March 1, 2019, 3:51 a.m.

    Has anyone had any trouble with the finger nails and toe nails. I had my thyroid removed in 2007 after a...

  • Feels like PMS all the time

    Feb. 28, 2019, 7:33 p.m.

    I lost up to 20 pounds over several years before a doctor finally suspected thyroid problems and began the...

  • Orbital Decompression

    Feb. 28, 2019, 4:05 p.m.

    Hello - I've not had an OD, but we've heard many success stories from patients who have. Having an...

  • Orbital Decompression

    Feb. 28, 2019, 10:21 a.m.

    Hi all - I am getting ready to schedule the orbital decompression and I am scared to death - almost scared...

  • Feels like PMS all the time

    Feb. 25, 2019, 8:41 a.m.

    Hello - Like Liz1967, I've not heard of this as a side effect of levothyroxine. Have you started or stopped...

Questions? Problems? Please contact us at [email protected] or 877-643-3123.

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© 2019 Graves' Disease & Thyroid Foundation