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COVID-19 Resources (Updated April 24)

April 24, 2020

Visit us on YouTube to view our new webinar: Graves' Disease, Thyroid Eye Disease and COVID-19 featuring Dr. Terry Smith and Dr. Don Kikkawa. (Approx. running time is 60 minutes).

Stuck at home? Connect with your fellow patients online! We have several formats available for online support, including oneGRAVESvoice (a collaboration between the GDATF, Horizon Therapeutics, and rareLife solutions), the GDATF's online support forum, and our closed Facebook group (click Join/Visit in the ...

COVID-19 Resources (Updated April 24)
April 24, 2020
Visit us on YouTube to view our new webinar: Graves' Disease, Thyroid Eye Disease and COVID-19 featuring Dr. Terry Smith and Dr. Don Kikkawa. (Approx. running time is 60 minutes).

Stuck at home? Connect with your fellow patients online! We have several formats available for online support, including oneGRAVESvoice (a collaboration between the GDATF, Horizon Therapeutics, and rareLife solutions), the GDATF's online support forum, and our closed Facebook group (click Join/Visit in the ...

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Tepezza FDA Approval (teprotumumab-trbw)
Jan. 21, 2020
BREAKING NEWS: The FDA has approved Tepezza (teprotumumab-trbw) for the treatment of adults with thyroid eye disease. Wiley Chambers, M.D., deputy director of the Division of Transplant and Ophthalmology Products in the FDA’s Center for Drug Evaluation and Research noted, “Today’s approval marks an important milestone for the treatment of thyroid eye disease. Currently, there are very limited treatment options for this potentially debilitating disease. This treatment has the potential to alter the course of the disease, potentially sparing patients from needing multiple invasive surgeries by providing an alternative, non surgical treatment option.” Read more from the FDA regarding research results, adverse reactions, and the FDA's review process.

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Neuropsychiatric Symptoms and Graves'
July 2, 2019
If you enjoyed the GDATF's patient bulletin "What's Wrong With Me? I'm Not Myself Anymore", then you won't want to miss the sequel! "A survey study of neuropsychiatric complaints in patients with Graves’ disease: A reassessment of self-reported symptoms and current practice 20 years later" is now available as an e-manuscript that is free with Kindle Unlimited or $2.99 with Amazon. Many thanks to Dr. James Arruda for conducting this ...

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Recent News
- COVID-19 Resources (Updated April 24)
  April 24, 2020, 9:18 a.m.
- Webinar: Graves' Disease, Thyroid Eye Disease, and COVID-19
  April 18, 2020, 8:10 a.m.
- San Diego Patient Event!
  Feb. 7, 2020, 4:22 p.m.
- Tepezza (teprotumumab-trbw) Receives FDA Approval
  Jan. 21, 2020, 12:52 p.m.
- Teprotumumab Update
  Dec. 5, 2019, 9:14 a.m.

Recent Forum Posts

Getting regulated after thyroidectomy

June 17, 2020, 4:49 p.m.

This is great news - thanks for the update!
Getting regulated after thyroidectomy

June 17, 2020, 2:06 p.m.

Thank you for all the great info and support. I DID start feeling better Saturday, which was 4 days after...
Getting regulated after thyroidectomy

June 12, 2020, 6:11 p.m.

Hello - as Liz1967 noted, your body needs some time to heal, and you will need some time (a few weeks) to...
Thyroid Cancer

June 12, 2020, 6:04 p.m.

Hello - For patients who are considered low risk, RAI is not always recommended after thyroidectomy. Your...
Getting regulated after thyroidectomy

June 12, 2020, 10:43 a.m.

Liz, Thank you for your informative post. They didn't tell me not to take calcium within four hours of my...
Getting regulated after thyroidectomy

June 11, 2020, 1:35 p.m.

Do not take any calcium within 4 hours of taking your thyroid replacement. It interferes with absorption. You...
Getting regulated after thyroidectomy

June 11, 2020, 8:59 a.m.

I had my thyroid removed on June 3 rd and felt normal again for about 4 days, then started to decline. I've...
Thyroid Cancer

June 11, 2020, 8:54 a.m.

Thank you for your encouragement! I really appreciate it.
Thyroid Cancer

June 10, 2020, 4:33 a.m.

This is one of the major reasons to choose a thyroidectomy as Graves patients have a higher risk for...
Thyroid Cancer

June 9, 2020, 1:39 p.m.

I am one week out of choosing a Thyroidectomy. I was diagnosed with Graves in February. Today, I went in for...
New to this and need advice!!

May 21, 2020, 8:48 a.m.

Hi Kelly, It took a long time for me to get to the right MMI doseage. At one point I had to be checked once a...
New to this and need advice!!

May 20, 2020, 6:43 p.m.

Hello and welcome - The experience with methimazole is very individual. Many patients end up doing well on a...
Newly Diagnosed and not doing well

May 20, 2020, 6:39 p.m.

Hello and welcome - You might also try the PM feature, as members don't always check back here once they are...
New to this and need advice!!

May 20, 2020, 5:55 p.m.

It is hard to keep levels where you want them on methimazole. It requires frequent monitoring and dose...
Newly Diagnosed and not doing well

May 17, 2020, 2:02 p.m.

geckomama Hi all, Thank you for the nice and detailed replies. Yes, I am on methimazole and propranolol....

COVID-19 Resources (Updated April 24)

COVID-19 Resources (Updated April 24)

Tepezza FDA Approval (teprotumumab-trbw)

Neuropsychiatric Symptoms and Graves'

Recent News

Recent Forum Posts

Questions? Problems? Please contact us at [email protected] or 877-643-3123.