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  • Recent News

    Recent Forum Posts

    • Graves disease- can't find right dosing for methimazole

      May 26, 2016, 2:36 p.m.

      Hi everyone, The doctor can't seem to find the right dosing for methimazole. I have been on it for two years....

    • can't decide- IV steroids or oral

      May 26, 2016, 12:04 p.m.

      To Shirley and Liz - While eyes are not (yet) a big issue with me, I just have to jump in here and tell you...

    • can't decide- IV steroids or oral

      May 26, 2016, 11:49 a.m.

      Shirley, you are making me work today! Everyones disease course is so different. To complicate matters,...

    • Third relapse

      May 26, 2016, 10:53 a.m.

      Hello, I have not been on antithyroid drugs so I cannot speak out from my own experience. I will say it does...

    • Third relapse

      May 26, 2016, 10:48 a.m.

      Now they are talking about radiation and steroids following TT for the best outcome of TED. Outcome of...

    • Third relapse

      May 26, 2016, 8:42 a.m.

      Liz, the Standard of Care used to be to leave a tiny piece of thyroid, to avoid having take a thyroid...

    • can't decide- IV steroids or oral

      May 26, 2016, 8:39 a.m.

      For TED, (thyroid eye disease,) the main reason to give steroids is usually because the orbital swelling of...

    • can't decide- IV steroids or oral

      May 25, 2016, 2:33 p.m.

      I had to go back and look at my records and I actually had 3 months, not six weeks, of weekly SoluMedrol...

    • can't decide- IV steroids or oral

      May 25, 2016, 1:22 p.m.

      Thank you all. The comments are helpful. Liz, do you recall your IV dosing?

    • Third relapse

      May 25, 2016, 1:03 p.m.

      My TT was very quick and easy. Not scary. My only worry is that there might be a tiny thyroid remnant left....

    • can't decide- IV steroids or oral

      May 25, 2016, 12:55 p.m.

      The IV steroids helped with the irritation and kept retraction the same. Did not seem to do much for double...

    • Third relapse

      May 25, 2016, 11:48 a.m.

      Hello yet again Just found I have fourth relapse TSH 0.0 T4 30 Just felt a bit poorly for a week with some...

    • can't decide- IV steroids or oral

      May 25, 2016, 10:42 a.m.

      Hello, I remember hearing a thyroid specialist who at the time was attending a support group meeting for...

    • can't decide- IV steroids or oral

      May 25, 2016, 10:08 a.m.

      Liz, thank you so much for your comments. You mentioned that the IV steroids, when stopped, made eye...

    • can't decide- IV steroids or oral

      May 24, 2016, 1:37 p.m.

      I have had IV steroids (eight weekly infusions) as well as oral steroids with radiotherapy. I have tiny...

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