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Recent News

Recent Forum Posts

  • Graves disease- can't find right dosing for methimazole

    May 27, 2016, 3:15 p.m.

    My eye disease began very shortly after starting methimazole and progressed rapidly to optic neuropathy,...

  • Third relapse

    May 27, 2016, 3:04 p.m.

    I quickly got tired of the ups and downs on methimazole and I never felt right. With your thyroid gone, if...

  • Third relapse

    May 27, 2016, 1:31 p.m.

    Hi Saw the endocrinologist today He has been keen since last time for me to have TT or RAI and told me that...

  • Graves disease- can't find right dosing for methimazole

    May 27, 2016, 10:43 a.m.

    Thank you for sharing your thoughts. I have some thoughts too. Why would adding thyroxine to your methimazole...

  • Graves disease- can't find right dosing for methimazole

    May 26, 2016, 2:36 p.m.

    Hi everyone, The doctor can't seem to find the right dosing for methimazole. I have been on it for two years....

  • can't decide- IV steroids or oral

    May 26, 2016, 12:04 p.m.

    To Shirley and Liz - While eyes are not (yet) a big issue with me, I just have to jump in here and tell you...

  • can't decide- IV steroids or oral

    May 26, 2016, 11:49 a.m.

    Shirley, you are making me work today! Everyones disease course is so different. To complicate matters,...

  • Third relapse

    May 26, 2016, 10:53 a.m.

    Hello, I have not been on antithyroid drugs so I cannot speak out from my own experience. I will say it does...

  • Third relapse

    May 26, 2016, 10:48 a.m.

    Now they are talking about radiation and steroids following TT for the best outcome of TED. Outcome of...

  • Third relapse

    May 26, 2016, 8:42 a.m.

    Liz, the Standard of Care used to be to leave a tiny piece of thyroid, to avoid having take a thyroid...

  • can't decide- IV steroids or oral

    May 26, 2016, 8:39 a.m.

    For TED, (thyroid eye disease,) the main reason to give steroids is usually because the orbital swelling of...

  • can't decide- IV steroids or oral

    May 25, 2016, 2:33 p.m.

    I had to go back and look at my records and I actually had 3 months, not six weeks, of weekly SoluMedrol...

  • can't decide- IV steroids or oral

    May 25, 2016, 1:22 p.m.

    Thank you all. The comments are helpful. Liz, do you recall your IV dosing?

  • Third relapse

    May 25, 2016, 1:03 p.m.

    My TT was very quick and easy. Not scary. My only worry is that there might be a tiny thyroid remnant left....

  • can't decide- IV steroids or oral

    May 25, 2016, 12:55 p.m.

    The IV steroids helped with the irritation and kept retraction the same. Did not seem to do much for double...

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