I had severe TED and had both orbital radiation and orbital decompressions. I was losing vision also. Sometimes radiation is used after decompression failure. Orbital radiation carries some risk and is not generally used in the very young but each case has to weigh risks vs benefits. I had IV steroids, followed by thyroidectomy, then orbital radiation and oral steroids, and a year later, orbital decompression. The most important thing to do is to find ophthalmologists very experienced with Graves. If you are near one of the centers known for this, like Kellogg in Michigan or Univ of CA in San Francisco. Shiley, Wilmer, Emory, etc, usually a big university, I would go there. I had radiation done at Emory in Atlanta, rest at Kellogg. This disease is hard for an adult, I cannot imagine how difficult it is for a child. It took a lot of research to decide where to seek treatment but despite the severity of my TED, my rehabilitation is complete and I am left with minimal effects, so things certainly can get a lot better. Best of luck.