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#1 July 28, 2017 14:29:12

barbra
From: Hagerstown, MD.
Registered: 2013-05-23
Posts: 148
Profile  

After a long absence, back again!

Hi guys and gals,

I haven't communicated on this forum for quite a while. I have been feeling well, until about 6 months ago. Actually, I am feeling quite well now. My TSH swung up and down a bit but no big deal, I eat well, sleep ok, the ten pounds I gained come most likely from eating everything that can't get away fast enough - just one little problem: The very small goiter that I had is slowly growing, together with two nodules, which now makes it impossible to lay on my back and is starting to impede my air supply. My throat feels dry and makes me cough.
Since I had radiation done on my thyroid back in 2013 it is supposedly dead. According to the latest Ultra Sound and a scope with camera inserted through my nose by an ENT, no thyroid tissue remains on my right side. Left side, though, is presenting a problem. Could be cancer, could be something else.
So, I am scheduled for a total thyroidectomy on the 16th of next month, and then I will know what's going on. Don't know what or how much they have to remove, I hope we are not talking para thyroids or lymph nodes. Like I said, I just have to wait and see.
It seems like the days are crawling along, the waiting makes me nuts.
Fortunately, I have no eye involvement.
I will be back after all this is over and fill you all in, hopefully, my whining days are still behind me .

Wish me luck.

Barbra.


I'm a little wounded, but I am not slain; I will lay me down for to bleed awhile. Then I will rise and fight with you again.
J. Dryden

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#2 July 28, 2017 19:45:16

AzGravesGuy
From: Peoria, AZ
Registered: 2012-08-07
Posts: 142
Profile  

After a long absence, back again!

Hey Barbra!

Welcome back!

That's awesome you still feel good with something going on in there. It may take a few weeks post surgery but your throat will feel so much better with it gone for good.

I wish you the best of luck for a safe and successful surgery.
Let us know how it goes!

Rob

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#3 July 28, 2017 21:10:13

Kimberly
Online Facilitator
Registered: 2008-10-14
Posts: 3985
Profile  

After a long absence, back again!

Glad to see you back, but sorry for the circumstances! Hope that all goes well with the surgery…please keep us posted!


Kimberly
GDATF Forum Facilitator

…through nature's inflexible grace, I'm learning to live…
– Dream Theater

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#4 July 29, 2017 03:13:42

emmtee
From: Phoenix, AZ
Registered: 2011-10-26
Posts: 106
Profile  

After a long absence, back again!

I wouldn't worry too much about the parathyroids since it sounds like they'll be focusing on your left side and won't be bothering your right side much. My surgeon told me that even though we have 4 parathyroids, we can actually get by with only one of them, or even one half. Most people have no problem at all, but depending on where they're positioned, it can be hard to avoid them. I've heard of them actually being embedded in the thyroid tissue, but again, this is rare. When I had my TT, I had to sign off on a “possible parathyroidectomy” in addition to my TT just in case it was necessary, but it wasn't.

You mentioned having an ultrasound. Have you had a FNA (Fine Needle Aspiration, or Biopsy)? I had one and the results were inconclusive, so it really wasn't all that helpful in my case.

I had a goiter and a nodule that made me feel like I was choking when I bent my head down - like when I was styling my hair or lying in bed with too many pillows. My nodule was pressing on my trachea, pushing it off center and was also growing down past my collar bone. When the pathologists examined the tumor it measured 7 cm, but it was benign.

I only had 10 days from my appointment with my surgeon until my surgery, and there was so much to do. It's good that you have a little more time. Did they order a thyroglobulin test? I wouldn't put that off in case your lab screws up like mine did. (They did the wrong test - thyroglobulin antibodies, so now I don't have my pre-TT levels to compare later tests to).

Good luck with your surgery. I hope everything goes as well as mine did and that the findings are also benign.

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#5 July 29, 2017 07:07:50

barbra
From: Hagerstown, MD.
Registered: 2013-05-23
Posts: 148
Profile  

After a long absence, back again!

The only FNA I have had was back in 2013 when it all started. It was negtive at that time.
No thyroglobulin test so far (that I know of).
I have a pre-sugery conference scheduled on the 4th, more info then.
Thanks for the good wishes.

Hugs.
Barbra.


I'm a little wounded, but I am not slain; I will lay me down for to bleed awhile. Then I will rise and fight with you again.
J. Dryden

Edited barbra (July 29, 2017 07:16:47)

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#6 July 31, 2017 01:36:59

emmtee
From: Phoenix, AZ
Registered: 2011-10-26
Posts: 106
Profile  

After a long absence, back again!

Thyroglobulin is a cancer marker, so I think they'd only order that test if they suspected something. If your lab is Quest, you probably won't have a problem. LabCorp was the one that messed up my test. My doctor's office is partly to blame because they kept giving me the Sonora Quest form which didn't have the same codes, but LabCorp always accepted it and said it was fine. Then they just guessed about which test the doctor wanted. After my surgery my endo ordered this test three more times and they did the wrong test every time. After the last time she was able to catch them while they still had my blood sample and got them to run the right one. So a year and a half after my surgery, I finally got the test done. (Even though my tumor was benign, my surgeon still wants me to get this test done annually because my tumor was so very large and there's a slim chance that the pathologists missed something).

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#7 Aug. 5, 2017 06:41:58

barbra
From: Hagerstown, MD.
Registered: 2013-05-23
Posts: 148
Profile  

After a long absence, back again!

Hi,

Had the pre-op checkup yesterday and everything is still a go for the 16th.
Won't have a time until about 48 hours before.
I did not know that they don't use steri strips, they use glue, which will peel off after a time. Nothing like having your throat cut and glued back together.
I'll be in touch again when this is over.
You all take good care.

Hugs.
Barbra.


I'm a little wounded, but I am not slain; I will lay me down for to bleed awhile. Then I will rise and fight with you again.
J. Dryden

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#8 Aug. 6, 2017 14:06:00

flora
Registered: 2013-03-28
Posts: 130
Profile  

After a long absence, back again!

Sending good thoughts and good wishes to you, Barbra - just like you have sent to so many of us here on the forum!

- flora


… there was a star danced, and under that was I born.

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#9 Aug. 8, 2017 23:36:19

emmtee
From: Phoenix, AZ
Registered: 2011-10-26
Posts: 106
Profile  

After a long absence, back again!

I'm glad you were able to meet with your surgeon. It sounds like you're getting good care.

My surgeon used surgical glue on the incision, and then the wound was covered with steri-strips (placed horizontally in my case, although I've seen photos in which they're placed vertically). I was told that I could shower with the steri-strips, but to just let the water run over them and not disturb them - that they'd fall off on their own. Mine held so well that they were still in place when I met with my surgeon for my two-weeks post-op appointment, and she had to remove them.

Best of luck to you next week.

Marci

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#10 Aug. 9, 2017 03:38:48

Liz1967
Registered: 2014-02-25
Posts: 195
Profile  

After a long absence, back again!

There are internal dissolvable sutures, the glue only holds together the superficial skin. I had glue, no steristrips, after my TT and it healed with barely visible scar.

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