Hello - I had to re-register because I could not remember my original info. I have been reading this forum for about 6 years. It has been informative as heck and I have gotten great comfort in our common denominator - Graves.
I am 53 years old and after many years of battling Graves, I decided to have my thyroid out. I was on Methimazole for years and had ups and downs but never could find a great place. My first doctor wasn't someone I “meshed with” and was adamant that I have it removed immediately. I changed doctors and through the years my new fabulous doctor supported me in my treatment plan although I know she would hope that one day I would get to the point where I made the decision to remove it. I had all the anxiety, all of the emotional side effects, I lost weight, I gained weight, my body ached, and at times I felt great. I think in my case, it all became the “new norm” for me. This past year was extremely bad as far as symptoms and I mentally was drained from it. I even, for the first time, went Hypo for a short time and then my TSH disappeared again. I tried eliminating foods, supplements, you name it, I gave it a shot. But this past year the sweating was disgusting. I would just sweat buckets when everyone else was shivering. And if I had one adult beverage, I was a fountain. I just got so sick of it all I finally scheduled a thyroidectomy. I am fortunate to live in an area where we have top surgeons and on June 23rd I said goodbye to my thyroid. The surgery went well, I stayed over one night and then came home. Not sure why but I never slept a wink in the hospital. I was wide awake but when I came home the next day I slept for 36 hours straight. Got up to pee and take some pain meds and that was it. And after that, it was just tylenol. I have to say that an immediate feeling of calm came over me. The worst part of the surgery was the after effects of the breathing tube they insert. My throat was so sore for a few days and I could hardly swallow. The incision itself was nothing compared to my throat. I had glue over it and when it came off after about a week my incision was perfect. I am not saying it wasn't sore, but it wasn't bad. It has been 3-weeks since my surgery and I am taking Levothyroxine 125 mcg. I saw my endo today and I still have a 0.01 TSH level but she said it takes some time so we are going to stick with my dose and recheck my levels in three weeks. We talked about the different choices of thyroid meds and treating T3 and how she felt about that. As I said, right now it's to early so if I need that at least I know she is open to it. I was tired for about 2-weeks and then I started to snap out of it. My sleep cycle was a little off for about a week but it's better. I don't sleep nearly as much as I did before because I think my body running so fast all day exhausted me. I would sleep for 12 hours at a pop with no trouble before. So things are great so far. I am petrified that I am going to gain a ton of weight but who isn't…….I am in my 50's. I have been very careful, even though it's soft ice cream season, and I have only fluctuated 5 pounds up and down. Not to bad. Now if you ask me now that I have had my thyroid removed if I regret waiting so long……….well yes because even though it's only been 3-weeks and even know my TSH is still so low I do feel so much better. I was stubborn as hell and really thought I could regulate it. I came here to share my experience with all of you because although I was often a silent participant here, I got a lot of knowledge and infor from everyone's posts. So I wanted to share my personal experience with my journey of Graves. If anyone has any questions please ask. Thanks so much….Suzanne