Hello and welcome – We are fellow patients here, not docs, but I’ve not heard of patients in the U.S. being started on both Synthroid and Methimazole right after diagnosis (or relapse). For patients who are having difficulty getting stabilized on antithyroid meds (ATDs) like methimazole (particularly children), docs can give the patient a consistent dose of ATDs, and then supplement with a small amount of thyroid hormone replacement as needed to make sure the patient doesn’t go hypO. This is a modified version of a therapy called “block & replace” that has been successful in Japan, that involves large doses of ATDs supplemented by thyroid hormone replacement, but the results have not been as good elsewhere. I would definitely ask your doc about the rationale behind the Synthroid.
I know from personal experience that the weight issues can be very frustrating. We’ve heard from patients who have used various dietary approaches (vegan, gluten-free, paleo, anti-inflammatory, low iodine, eliminating food sensitivities), but there just isn’t a lot of good research to determine if one of these approaches is better than the others for Graves’.
I tried a fairly restrictive diet when I was first diagnosed (no gluten, dairy, eggs, soy, sugar), and honestly, it stressed me out more than it helped. For example, eating out at a restaurant or dining at someone’s home becomes a huge struggle to find something you can eat. But if you find a dietary program that makes you feel great (and that gives you all the nutrients you need), go for it.
Hopefully, someone will chime in on raw vegan – I believe that AZGravesGuy tried vegan at one point.
Another issue to keep in mind is that the latest medical guidance recommends testing antibodies (TSI, TRAb) prior to withdrawing antithyroid meds. The rationale behind that is that if your antibodies are still raging, even if you are euthyroid at that moment, your hyperthyroidism is likely to recur.
Take care – and keep us posted on how you are doing!
GDATF Forum Facilitator
…through nature's inflexible grace, I'm learning to live…
– Dream Theater