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Links



Other health organizations for physician referral and helpful information

American Thyroid Association (ATA)  

American Association of Clinical Endocrinologists (AACE)  

American Association of Endocrine Surgeons  

The Endocrine Society  

The Hormone Foundation  

American Autoimmune Related Diseases Associations (AARDA)

The Mayo Clinic - Health Information  

The Cleveland Clinic - Health Information

EUGOGO - European Group on Graves' Orbitopathy

International Thyroid Eye Disease Society

International Thyroid Patient Groups

Thyroid Federation International

The Thyroid Federation International (TFI) was established in Toronto in 1995, and is now registered in Sweden. This group is a network of patient support organizations from many countries, including Europe, North and South America, Australia, and Japan.  Click here for a full listing of members.

Thyroid Cancer:

  • The Light of Life Foundation was established in the spring of 1997 by Joan Shey, a patient herself. The mission of the foundation (a 501(c)(3) non-profit organization) is to improve the quality of life of thyroid cancer patients through continual education of the lay public and the medical community, and by promoting research and development to improve thyroid cancer care. To contact the Light of Life Foundation or Joan Shey, visit their website: Click here.
  • ThyCa: Thyroid Cancer Survivors' Association, a national non-profit 501 C(3) for thyroid cancer survivors, family members, and healthcare professionals. They are dedicated to support, education, and communication for thyroid cancer survivors, their families and friends. For more information from ThyCa, visit their website: Click here.

Patient Advocate Foundation (PAF), a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases. Visit their website: Patient Advocate Foundation.

Government

National Institutes of Health (NIH)

NIH News - Individuals who want to participate in research studies now can connect online with researchers nationwide through the first disease-neutral, volunteer recruitment registry. More details >>

Recent News

Recent Forum Posts

  • Well, here goes!

    Oct. 31, 2014, 6:37 a.m.

    I am almost back to my pre-Graves weight. Endurance, strength, and clarity are all back to normal. My hair...

  • Well, here goes!

    Oct. 31, 2014, 6:33 a.m.

    Happy Halloween everyone! I fell into a bit of the hypo a few weeks ago and I now take 137mcg on Mondays and...

  • Graves disease and surgery

    Oct. 31, 2014, 5:58 a.m.

    The risk of having interoperative hypotension doubles with hypothyroidism....

  • Graves disease and surgery

    Oct. 30, 2014, 8:59 a.m.

    Hello and welcome! Usually, the issue with Graves' and surgery is that the patient is too hypER (i.e. Free T4...

  • Hi - RAI update in UK.

    Oct. 30, 2014, 8:49 a.m.

    Hello - The time frame I usually hear referenced is 6-18 weeks, but that is for patients who have...

  • Ratio between TSH and Free T4 levels?

    Oct. 30, 2014, 8:46 a.m.

    @Sue - The relationship between T4 and TSH is complex and I don't think it's fully understood: (Note on...

  • Hi - RAI update in UK.

    Oct. 30, 2014, 5:21 a.m.

    I had the impression the nurse was meaning they wouldn`t let me become too hyper- but you may be right...

  • Graves disease and surgery

    Oct. 29, 2014, 8:12 a.m.

    My 24 yr old niece is scheduled for surgery to remove the thyroid next week but her tsh levels fluctuate...

  • Ratio between TSH and Free T4 levels?

    Oct. 28, 2014, 9:26 p.m.

    Hey there Ras Lady -nice to “see” you! Cautious hope - I like it, and I think every Gravester...

  • Ratio between TSH and Free T4 levels?

    Oct. 28, 2014, 6:36 p.m.

    Hey Sue! How've ya been? I would be tempted to ask him whether he finds this TSH/FT4 ratio applies in the...

  • Ratio between TSH and Free T4 levels?

    Oct. 28, 2014, 4:07 p.m.

    I had a routine follow up with my endo today. Since my TT July 2013 we have been trying to get my TSH up to...

  • Hypo and Hyper at the same time...sigh

    Oct. 27, 2014, 9:03 p.m.

    Thanks Yes, a second opinion is what I need. My Endo even recommended it. My T3/4 is low based on the lab...

  • Hypo and Hyper at the same time...sigh

    Oct. 27, 2014, 9:03 p.m.

    Thanks Yes, a second opinion is what I need. My Endo even recommended it. My T3/4 is low based on the lab...

  • Hypo and Hyper at the same time...sigh

    Oct. 27, 2014, 11:47 a.m.

    Hello – First, it’s important to know what the reference ranges are for each test, as different labs use...

  • Hi - RAI update in UK.

    Oct. 27, 2014, 11:21 a.m.

    joy123 She said that some people can suffer badly post RAI and they won`t let me, but to give it a week and...

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