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Links



Other health organizations for physician referral and helpful information

American Thyroid Association (ATA)  

American Association of Clinical Endocrinologists (AACE)  

American Association of Endocrine Surgeons  

The Endocrine Society  

The Hormone Foundation  

American Autoimmune Related Diseases Associations (AARDA)

The Mayo Clinic - Health Information  

The Cleveland Clinic - Health Information

EUGOGO - European Group on Graves' Orbitopathy

International Thyroid Eye Disease Society

International Thyroid Patient Groups

Thyroid Federation International

The Thyroid Federation International (TFI) was established in Toronto in 1995, and is now registered in Sweden. This group is a network of patient support organizations from many countries, including Europe, North and South America, Australia, and Japan.  Click here for a full listing of members.

Thyroid Cancer:

  • The Light of Life Foundation was established in the spring of 1997 by Joan Shey, a patient herself. The mission of the foundation (a 501(c)(3) non-profit organization) is to improve the quality of life of thyroid cancer patients through continual education of the lay public and the medical community, and by promoting research and development to improve thyroid cancer care. To contact the Light of Life Foundation or Joan Shey, visit their website: Click here.
  • ThyCa: Thyroid Cancer Survivors' Association, a national non-profit 501 C(3) for thyroid cancer survivors, family members, and healthcare professionals. They are dedicated to support, education, and communication for thyroid cancer survivors, their families and friends. For more information from ThyCa, visit their website: Click here.

Patient Advocate Foundation (PAF), a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases. Visit their website: Patient Advocate Foundation.

Government

National Institutes of Health (NIH)

NIH News - Individuals who want to participate in research studies now can connect online with researchers nationwide through the first disease-neutral, volunteer recruitment registry. More details >>

Recent News

Recent Forum Posts

  • Hello

    Nov. 21, 2014, 3:37 p.m.

    Hello - Insomnia is definitely a symptom of hyperthyroidism, and I've also heard stories from others who had...

  • Hi - RAI update in UK.

    Nov. 21, 2014, 3:25 p.m.

    joy123 I notice the T4 has raised since the last bloods - is this a good sign? I`ve been experiencing nausea...

  • Hello

    Nov. 21, 2014, 8:09 a.m.

    Hello swithed,ive had graves diagnosed for 20 years.had RAI 20 years ago.i well remember the insomnia.in the...

  • Hello

    Nov. 21, 2014, 7:43 a.m.

    Shirley is right. It is important to find a good surgeon who does a lot of thyroidectomies. Mine was great,...

  • Hello

    Nov. 20, 2014, 8:03 p.m.

    I had surgery. Cause it was the quickest. And it is. Major consideration is that you need a few weeks,...

  • Hello

    Nov. 20, 2014, 12:53 p.m.

    I had no luck with methimazole and eventually got tired of feeling bad, but it is certainly worth trying. If...

  • Update and swollen lymph nodes

    Nov. 20, 2014, 12:20 p.m.

    I had a total thyroidectomy after seven months of messing around with methimazole dosing. Best decision, easy...

  • Hi all! Been a long time! 2.5+ years!

    Nov. 19, 2014, 6:23 p.m.

    Thanks Kimberly. Saw Dr today, go back Fri for blood work. He says I have to take the methimazole twice a...

  • Hello

    Nov. 19, 2014, 6:08 p.m.

    Hi all, Another question - Some things I have read recently have me confused. Some say surgery is still a...

  • Hi all! Been a long time! 2.5+ years!

    Nov. 19, 2014, 9:17 a.m.

    Hello and welcome back! Hopefully, others will chime in on the sleep issues…I would definitely mention...

  • Hi - RAI update in UK.

    Nov. 19, 2014, 4:08 a.m.

    Thanks Kimberly Well looks like the RAI worked….my blood levels from yesterday are TSH 6.00 (0.35-...

  • Hi all! Been a long time! 2.5+ years!

    Nov. 18, 2014, 11:46 p.m.

    And I am much worse! For those that remember, last time I was here, I was getting ready for shoulder surgery...

  • Update and swollen lymph nodes

    Nov. 18, 2014, 5:17 p.m.

    Hi calbears, I'm so sorry you have to ride the roller coaster! I'm pretty sensitive to small changes in the...

  • Update and swollen lymph nodes

    Nov. 18, 2014, 6:38 a.m.

    Sorry for the continued rollercoaster ride! It sounds like you are someone (like me) who is fairly sensitive...

  • Update and swollen lymph nodes

    Nov. 17, 2014, 8:34 p.m.

    Yes, we really don't realize that hyPO is as hellish and awful as hyPER, until we have that experience. I am...

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