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Other health organizations:

American Thyroid Association (ATA)  

American Association of Clinical Endocrinologists (AACE)  

American Association of Endocrine Surgeons  

The Endocrine Society  

The Hormone Health Network

American Autoimmune Related Diseases Associations (AARDA)

The Mayo Clinic - Health Information  

The Cleveland Clinic - Health Information

EUGOGO - European Group on Graves' Orbitopathy

International Thyroid Eye Disease Society

Red Hot Mamas:  Menopause Education and Support 

National Suicide Prevention Lifeline 

International Association for Suicide Prevention 

International Thyroid Patient Groups

Thyroid Federation International

The Thyroid Federation International (TFI) was established in Toronto in 1995, and is now registered in Sweden. This group is a network of patient support organizations from many countries, including Europe, North and South America, Australia, and Japan.  Click here for a full listing of members.

Thyroid Cancer:

  • The Light of Life Foundation was established in the spring of 1997 by Joan Shey, a patient herself. The mission of the foundation (a 501(c)(3) non-profit organization) is to improve the quality of life of thyroid cancer patients through continual education of the lay public and the medical community, and by promoting research and development to improve thyroid cancer care. To contact the Light of Life Foundation or Joan Shey, visit their website: Click here.
  • ThyCa: Thyroid Cancer Survivors' Association, a national non-profit 501 C(3) for thyroid cancer survivors, family members, and healthcare professionals. They are dedicated to support, education, and communication for thyroid cancer survivors, their families and friends. For more information from ThyCa, visit their website: Click here.

Patient Advocate Foundation (PAF), a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases. Visit their website: Patient Advocate Foundation.


National Institutes of Health (NIH)

NIH News - Individuals who want to participate in research studies now can connect online with researchers nationwide through the first disease-neutral, volunteer recruitment registry. More details >>

Recent News

Recent Forum Posts

  • Graves disease- can't find right dosing for methimazole

    May 26, 2016, 2:36 p.m.

    Hi everyone, The doctor can't seem to find the right dosing for methimazole. I have been on it for two years....

  • can't decide- IV steroids or oral

    May 26, 2016, 12:04 p.m.

    To Shirley and Liz - While eyes are not (yet) a big issue with me, I just have to jump in here and tell you...

  • can't decide- IV steroids or oral

    May 26, 2016, 11:49 a.m.

    Shirley, you are making me work today! Everyones disease course is so different. To complicate matters,...

  • Third relapse

    May 26, 2016, 10:53 a.m.

    Hello, I have not been on antithyroid drugs so I cannot speak out from my own experience. I will say it does...

  • Third relapse

    May 26, 2016, 10:48 a.m.

    Now they are talking about radiation and steroids following TT for the best outcome of TED. Outcome of...

  • Third relapse

    May 26, 2016, 8:42 a.m.

    Liz, the Standard of Care used to be to leave a tiny piece of thyroid, to avoid having take a thyroid...

  • can't decide- IV steroids or oral

    May 26, 2016, 8:39 a.m.

    For TED, (thyroid eye disease,) the main reason to give steroids is usually because the orbital swelling of...

  • can't decide- IV steroids or oral

    May 25, 2016, 2:33 p.m.

    I had to go back and look at my records and I actually had 3 months, not six weeks, of weekly SoluMedrol...

  • can't decide- IV steroids or oral

    May 25, 2016, 1:22 p.m.

    Thank you all. The comments are helpful. Liz, do you recall your IV dosing?

  • Third relapse

    May 25, 2016, 1:03 p.m.

    My TT was very quick and easy. Not scary. My only worry is that there might be a tiny thyroid remnant left....

  • can't decide- IV steroids or oral

    May 25, 2016, 12:55 p.m.

    The IV steroids helped with the irritation and kept retraction the same. Did not seem to do much for double...

  • Third relapse

    May 25, 2016, 11:48 a.m.

    Hello yet again Just found I have fourth relapse TSH 0.0 T4 30 Just felt a bit poorly for a week with some...

  • can't decide- IV steroids or oral

    May 25, 2016, 10:42 a.m.

    Hello, I remember hearing a thyroid specialist who at the time was attending a support group meeting for...

  • can't decide- IV steroids or oral

    May 25, 2016, 10:08 a.m.

    Liz, thank you so much for your comments. You mentioned that the IV steroids, when stopped, made eye...

  • can't decide- IV steroids or oral

    May 24, 2016, 1:37 p.m.

    I have had IV steroids (eight weekly infusions) as well as oral steroids with radiotherapy. I have tiny...

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