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Links



Other health organizations:

American Thyroid Association (ATA)  

American Association of Clinical Endocrinologists (AACE)  

American Association of Endocrine Surgeons  

The Endocrine Society  

The Hormone Health Network

American Autoimmune Related Diseases Associations (AARDA)

The Mayo Clinic - Health Information  

The Cleveland Clinic - Health Information

EUGOGO - European Group on Graves' Orbitopathy

International Thyroid Eye Disease Society

Red Hot Mamas:  Menopause Education and Support 

National Suicide Prevention Lifeline 

International Association for Suicide Prevention 

International Thyroid Patient Groups

Thyroid Federation International

The Thyroid Federation International (TFI) was established in Toronto in 1995, and is now registered in Sweden. This group is a network of patient support organizations from many countries, including Europe, North and South America, Australia, and Japan.  Click here for a full listing of members.

Thyroid Cancer:

  • The Light of Life Foundation was established in the spring of 1997 by Joan Shey, a patient herself. The mission of the foundation (a 501(c)(3) non-profit organization) is to improve the quality of life of thyroid cancer patients through continual education of the lay public and the medical community, and by promoting research and development to improve thyroid cancer care. To contact the Light of Life Foundation or Joan Shey, visit their website: Click here.
  • ThyCa: Thyroid Cancer Survivors' Association, a national non-profit 501 C(3) for thyroid cancer survivors, family members, and healthcare professionals. They are dedicated to support, education, and communication for thyroid cancer survivors, their families and friends. For more information from ThyCa, visit their website: Click here.

Patient Advocate Foundation (PAF), a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases. Visit their website: Patient Advocate Foundation.

Government

National Institutes of Health (NIH)

NIH News - Individuals who want to participate in research studies now can connect online with researchers nationwide through the first disease-neutral, volunteer recruitment registry. More details >>

Recent News

Recent Forum Posts

  • Newly diagnosed and confused

    June 25, 2016, 9:22 a.m.

    Thanks for sharing your experience. I am exploring options. All are scary. My attitude at the present time...

  • On Week 12 and very discouraged

    June 24, 2016, 8 p.m.

    Thank you both. I did lose a lot of weight before being diagnosed. Since being on the meds I have gained 10...

  • Functioning with Graves- the new normal...

    June 24, 2016, 6:49 p.m.

    Kimberly Great info - thanks for sharing your story! …Of course, focusing on nutrient-dense whole...

  • Functioning with Graves- the new normal...

    June 24, 2016, 6:29 p.m.

    Great info - thanks for sharing your story! One note about diet is that there is a LOT of conflicting...

  • Functioning with Graves- the new normal...

    June 23, 2016, 8:45 p.m.

    Hi! I started this thread to hopefully help those new to graves get an idea of what to expect down the road....

  • On Week 12 and very discouraged

    June 23, 2016, 7:09 p.m.

    I agree with Ellen about seeing an ophthalmologist, sooner rather than later. Weight issues, while annoying,...

  • On Week 12 and very discouraged

    June 23, 2016, 6:17 p.m.

    Hello - I know from personal experience that the weight issues are VERY frustrating. However, your #1...

  • On Week 12 and very discouraged

    June 23, 2016, 1:28 p.m.

    Hello, I am going to let other people respond to your question about being able to control your weight while...

  • On Week 12 and very discouraged

    June 23, 2016, 10:51 a.m.

    I am fairly new to being diagnosed with GD. When I was diagnosed I was scared to death. My heart rate was 140...

  • Newly diagnosed and confused

    June 23, 2016, 9:07 a.m.

    Evelyn I am thankful to have found this forum! I have recently been diagnosed with Graves' Dz. My endo's...

  • Newly diagnosed and confused

    June 22, 2016, 12:02 p.m.

    Hello, Today, the success story thread caught my eye. I saw your name Khadijah next to it as having replied...

  • Terrified of Graves

    June 22, 2016, 11:52 a.m.

    If you feel your doctor is brushing you off or ignoring you, it might be time for a new doctor. The first one...

  • Just curious about RAI

    June 22, 2016, 11:38 a.m.

    When I was first diagnosed with GD 9 years ago, the endocrinologist wanted to give me RAI immediately. I...

  • Haven't posted in a very long time

    June 22, 2016, 6:39 a.m.

    Your post is exactly what I needed at this time. A good reminder that this disease takes time to become...

  • TSI - Thyroid Stimulating Immunoglobulins Levels

    June 21, 2016, 8:40 p.m.

    Hello - The antibodies have a fairly long “shelf life”, so my own doc only checks them every few...

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