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Links



Other health organizations for physician referral and helpful information

American Thyroid Association (ATA)  

American Association of Clinical Endocrinologists (AACE)  

American Association of Endocrine Surgeons  

The Endocrine Society  

The Hormone Foundation  

American Autoimmune Related Diseases Associations (AARDA)

The Mayo Clinic - Health Information  

The Cleveland Clinic - Health Information

EUGOGO - European Group on Graves' Orbitopathy

International Thyroid Eye Disease Society

International Thyroid Patient Groups

Thyroid Federation International

The Thyroid Federation International (TFI) was established in Toronto in 1995, and is now registered in Sweden. This group is a network of patient support organizations from many countries, including Europe, North and South America, Australia, and Japan.  Click here for a full listing of members.

Thyroid Cancer:

  • The Light of Life Foundation was established in the spring of 1997 by Joan Shey, a patient herself. The mission of the foundation (a 501(c)(3) non-profit organization) is to improve the quality of life of thyroid cancer patients through continual education of the lay public and the medical community, and by promoting research and development to improve thyroid cancer care. To contact the Light of Life Foundation or Joan Shey, visit their website: Click here.
  • ThyCa: Thyroid Cancer Survivors' Association, a national non-profit 501 C(3) for thyroid cancer survivors, family members, and healthcare professionals. They are dedicated to support, education, and communication for thyroid cancer survivors, their families and friends. For more information from ThyCa, visit their website: Click here.

Patient Advocate Foundation (PAF), a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases. Visit their website: Patient Advocate Foundation.

Government

National Institutes of Health (NIH)

NIH News - Individuals who want to participate in research studies now can connect online with researchers nationwide through the first disease-neutral, volunteer recruitment registry. More details >>

Recent News

Recent Forum Posts

  • I`d value your opinions!

    Dec. 18, 2014, 8:43 a.m.

    Thanks Kimberly My doctor has left today for the holidays so unfortunately I`m left with this decision. I had...

  • I`d value your opinions!

    Dec. 18, 2014, 8:10 a.m.

    Hello - Hopefully, others who have adjusted dosing after RAI or surgery will chime in with their experiences....

  • I`d value your opinions!

    Dec. 18, 2014, 6:05 a.m.

    As you`ll see in previous postings, I had RAI just over 2 months ago. I went hypo pretty quickly and was...

  • GI Issues

    Dec. 16, 2014, 2:23 p.m.

    No wonder you aren't feeling well! Definitely file away a copy of that lab report. The next time your doc...

  • GI Issues

    Dec. 16, 2014, 12:09 p.m.

    My endo just called and is putting me back on 88 mgs of synthroid. T3 0.7 T4 0.3 TSH 35.79 Hoping I start to...

  • GI Issues

    Dec. 15, 2014, 5:01 p.m.

    Thank you for the information. I went and did my labs today and will be waiting to hear from my doctor...

  • hello and issues with Tapazole (methamazole)?

    Dec. 15, 2014, 1:42 p.m.

    Hello. I would think you need to see a doctor and get some labs to make sure your white count didn't drop...

  • hello and issues with Tapazole (methamazole)?

    Dec. 15, 2014, 1:42 p.m.

    Hello. I would think you need to see a doctor and get some labs to make sure your white count didn't drop...

  • Is ATD a temporary method to treat Graves?

    Dec. 15, 2014, 10:35 a.m.

    Hello and welcome! Some fluctuation is common, although certainly not the wild swings that you've been...

  • hello and issues with Tapazole (methamazole)?

    Dec. 15, 2014, 10:26 a.m.

    Hello and welcome! It's common for the dose of anti-thyroid meds to need adjusting throughout the Graves'...

  • new to GD

    Dec. 15, 2014, 10:20 a.m.

    dragonteeth When I went over pros and cons with my endo, she only put a limitation of not getting pregnant...

  • GI Issues

    Dec. 15, 2014, 10:14 a.m.

    Hello – Doctors do like to see TSH come back to normal, as suppressed TSH is associated with an increased...

  • Is ATD a temporary method to treat Graves?

    Dec. 15, 2014, 7:17 a.m.

    So to get this straight… I appears that many people with GD has this issue with the TSH levels going up...

  • hello and issues with Tapazole (methamazole)?

    Dec. 15, 2014, 1:57 a.m.

    Hi, I am 48 and a nurse by profession and was diagnosed with Graves disease in September 2013 after a...

  • new to GD

    Dec. 14, 2014, 1:52 p.m.

    New to the forum, 50 hours out from RAI admin. (Feeling good, no side effects despite a 14mCi dose). When I...

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