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Links



Other health organizations:

American Thyroid Association (ATA)  

American Association of Clinical Endocrinologists (AACE)  

American Association of Endocrine Surgeons  

The Endocrine Society  

The Hormone Health Network

American Autoimmune Related Diseases Associations (AARDA)

The Mayo Clinic - Health Information  

The Cleveland Clinic - Health Information

EUGOGO - European Group on Graves' Orbitopathy

International Thyroid Eye Disease Society

Red Hot Mamas:  Menopause Education and Support 

National Suicide Prevention Lifeline 

International Association for Suicide Prevention 

International Thyroid Patient Groups

Thyroid Federation International

The Thyroid Federation International (TFI) was established in Toronto in 1995, and is now registered in Sweden. This group is a network of patient support organizations from many countries, including Europe, North and South America, Australia, and Japan.  Click here for a full listing of members.

Thyroid Cancer:

  • The Light of Life Foundation was established in the spring of 1997 by Joan Shey, a patient herself. The mission of the foundation (a 501(c)(3) non-profit organization) is to improve the quality of life of thyroid cancer patients through continual education of the lay public and the medical community, and by promoting research and development to improve thyroid cancer care. To contact the Light of Life Foundation or Joan Shey, visit their website: Click here.
  • ThyCa: Thyroid Cancer Survivors' Association, a national non-profit 501 C(3) for thyroid cancer survivors, family members, and healthcare professionals. They are dedicated to support, education, and communication for thyroid cancer survivors, their families and friends. For more information from ThyCa, visit their website: Click here.

Patient Advocate Foundation (PAF), a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases. Visit their website: Patient Advocate Foundation.

Government

National Institutes of Health (NIH)

NIH News - Individuals who want to participate in research studies now can connect online with researchers nationwide through the first disease-neutral, volunteer recruitment registry. More details >>

Recent News

Recent Forum Posts

  • Orbital Decompression

    May 24, 2017, 2:43 p.m.

    I'll just throw my oar in here in case it helps. I have had bilateral OD, and was taking methimazole when I...

  • Orbital Decompression

    May 24, 2017, 1:25 p.m.

    Kimberly - How long have you been off of the methimazole? I am assuming you are in remission?

  • Orbital Decompression

    May 24, 2017, 1:23 p.m.

    Thank you both. Dr. Douglas is great. I just skyped with him. He told me ultimately I will need to have the...

  • GD with TED

    May 23, 2017, 5:47 p.m.

    Update, Saw my eye Dr and he is pleased with my numbers upon measuring my eyes. I have more movement from...

  • Orbital Decompression

    May 23, 2017, 3:45 p.m.

    Dr Douglas did my decompressions. My first experience with general anesthesia was my thyroidectomy. That...

  • Orbital Decompression

    May 23, 2017, 2:40 p.m.

    Hello - Hopefully, Liz1967 will chime in here. I can tell you that I had a surgery (unrelated to Graves')...

  • Orbital Decompression

    May 23, 2017, 7:22 a.m.

    I wanted to update you. I have a consultation with Dr. Douglas tomorrow at 4:00. I also got to read my CT...

  • Tests Are Normal but I Don't Feel It

    May 22, 2017, 3:47 p.m.

    Hello - Hopefully, you have a copy of your lab results so that you can check the reference range for...

  • Login Issues? Try Clearing Your Browser History and Restart

    May 22, 2017, 3:43 p.m.

    bumping…again…

  • Tests Are Normal but I Don't Feel It

    May 22, 2017, 1:35 p.m.

    Two weeks ago I had my 3 month checkup on my TSH (1.07) and Free T4 (.9). I was diagnosed 2 years ago,...

  • Updated Post: Registration is LIVE for San Diego Event on June 10th!

    May 19, 2017, 9:45 a.m.

    Registration is now LIVE for our San Diego event on June 10th at UC San Diego Shiley Eye Institute! The event...

  • Men With Graves’ and TED

    May 15, 2017, 11:01 a.m.

    Hi Jill - Sorry I missed this post! You might also consider posting this on the main forum with the subject...

  • Breakthrough Treatment for Thyroid Eye Disease!

    May 11, 2017, 10:10 a.m.

    Hi all - Dr. Raymond Douglas is on Facebook LIVE right now discussing results from a breakthrough trial for a...

  • GD with TED

    May 7, 2017, 6:09 a.m.

    Things do get better. I am finally on the “other side”, all corrective surgery done, and back to...

  • GD with TED

    May 6, 2017, 2:55 p.m.

    Thanks for posting your progress, gives us all a sense of hope that things will get better!! So happy for...

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