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Links



Other health organizations:

American Thyroid Association (ATA)  

American Association of Clinical Endocrinologists (AACE)  

American Association of Endocrine Surgeons  

The Endocrine Society  

The Hormone Health Network

American Autoimmune Related Diseases Associations (AARDA)

The Mayo Clinic - Health Information  

The Cleveland Clinic - Health Information

EUGOGO - European Group on Graves' Orbitopathy

International Thyroid Eye Disease Society

Red Hot Mamas:  Menopause Education and Support 

National Suicide Prevention Lifeline 

International Association for Suicide Prevention 

International Thyroid Patient Groups

Thyroid Federation International

The Thyroid Federation International (TFI) was established in Toronto in 1995, and is now registered in Sweden. This group is a network of patient support organizations from many countries, including Europe, North and South America, Australia, and Japan.  Click here for a full listing of members.

Thyroid Cancer:

  • The Light of Life Foundation was established in the spring of 1997 by Joan Shey, a patient herself. The mission of the foundation (a 501(c)(3) non-profit organization) is to improve the quality of life of thyroid cancer patients through continual education of the lay public and the medical community, and by promoting research and development to improve thyroid cancer care. To contact the Light of Life Foundation or Joan Shey, visit their website: Click here.
  • ThyCa: Thyroid Cancer Survivors' Association, a national non-profit 501 C(3) for thyroid cancer survivors, family members, and healthcare professionals. They are dedicated to support, education, and communication for thyroid cancer survivors, their families and friends. For more information from ThyCa, visit their website: Click here.

Patient Advocate Foundation (PAF), a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases. Visit their website: Patient Advocate Foundation.

Government

National Institutes of Health (NIH)

NIH News - Individuals who want to participate in research studies now can connect online with researchers nationwide through the first disease-neutral, volunteer recruitment registry. More details >>

Recent News

Recent Forum Posts

  • 5:2 / Intermittent Fasting

    May 24, 2015, 1:30 p.m.

    Hello! I am writing to ask if anyone else has noticed improved thyroid function with fasting. I have had...

  • Cancer and Graves Disease

    May 24, 2015, 1:27 a.m.

    Dear Shirley, Thank you so much for your attentiveness and sharing with me your medical challenges. I am so...

  • Cancer and Graves Disease

    May 23, 2015, 9:54 p.m.

    Holy Cow, Allie! Thank you for writing clarifications. I am s o glad you are being followed by end and...

  • Cancer and Graves Disease

    May 23, 2015, 6:36 p.m.

    I had several appointments last week with a Cardiologist assigned to my case via my Endocrinologist. They are...

  • Double Vision

    May 23, 2015, 5:30 a.m.

    Thanks, Liz. I'm one of those who has a really hard time with prednisone. Its been a real struggle. Neither...

  • Double Vision

    May 22, 2015, 5:20 a.m.

    Kathy, I am wondering if your intermittent esotropia is migraine related. I did see some cases in the...

  • Double Vision

    May 21, 2015, 3:34 p.m.

    I am new to the forum and mostly I'm concerned about my double vision, which at this point is off to the...

  • Patient Outreach Event - May 16th in Nashville, TN!

    May 20, 2015, 2 p.m.

    Many thanks for the kind words! It was great to meet you - I'm so glad that you found the meeting helpful....

  • Total Thyroidectomy, still Hyper?

    May 18, 2015, 8:30 p.m.

    Ellen, I realize you are giving some anecdotal stories of the experiences of other people. So there is lots...

  • Double Vision

    May 18, 2015, 5:49 p.m.

    I have severe TED, too. I did a lot of reading, and unfortunately I didn't come across any credible sources...

  • Patient Outreach Event - May 16th in Nashville, TN!

    May 17, 2015, 7:19 p.m.

    Hi Kimberly! I just wanted to drop in and thank you for the event in Nashville. You may not have gotten the...

  • Double Vision

    May 17, 2015, 4:36 p.m.

    Unfortunately, I have not heard of double vision getting better on its' own. Everything Liz1967, said i agree...

  • Cancer and Graves Disease

    May 17, 2015, 2:13 a.m.

    Snelsen, In response to some of your Q's.. 1. Like yourself, I reside on the West Coast, North. 2. I am in my...

  • Double Vision

    May 16, 2015, 5:56 a.m.

    I have Graves eye disease with double vision and mine did not get better. It stopped getting worse after...

  • Double Vision

    May 15, 2015, 5:22 p.m.

    Hi there, I just found this website today and have been reading the posts. Last August I had small bumps...

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