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Links



Other health organizations:

American Thyroid Association (ATA)  

American Association of Clinical Endocrinologists (AACE)  

American Association of Endocrine Surgeons  

The Endocrine Society  

The Hormone Health Network

American Autoimmune Related Diseases Associations (AARDA)

The Mayo Clinic - Health Information  

The Cleveland Clinic - Health Information

EUGOGO - European Group on Graves' Orbitopathy

International Thyroid Eye Disease Society

Red Hot Mamas:  Menopause Education and Support 

National Suicide Prevention Lifeline 

International Association for Suicide Prevention 

International Thyroid Patient Groups

Thyroid Federation International

The Thyroid Federation International (TFI) was established in Toronto in 1995, and is now registered in Sweden. This group is a network of patient support organizations from many countries, including Europe, North and South America, Australia, and Japan.  Click here for a full listing of members.

Thyroid Cancer:

  • The Light of Life Foundation was established in the spring of 1997 by Joan Shey, a patient herself. The mission of the foundation (a 501(c)(3) non-profit organization) is to improve the quality of life of thyroid cancer patients through continual education of the lay public and the medical community, and by promoting research and development to improve thyroid cancer care. To contact the Light of Life Foundation or Joan Shey, visit their website: Click here.
  • ThyCa: Thyroid Cancer Survivors' Association, a national non-profit 501 C(3) for thyroid cancer survivors, family members, and healthcare professionals. They are dedicated to support, education, and communication for thyroid cancer survivors, their families and friends. For more information from ThyCa, visit their website: Click here.

Patient Advocate Foundation (PAF), a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases. Visit their website: Patient Advocate Foundation.

Government

National Institutes of Health (NIH)

NIH News - Individuals who want to participate in research studies now can connect online with researchers nationwide through the first disease-neutral, volunteer recruitment registry. More details >>

Recent News

Recent Forum Posts

  • On Week 12 and very discouraged

    July 20, 2016, 1:22 p.m.

    Hopefully, your doctor is looking at Free T4 and T3 in making dosing decisions. TSH can remain suppressed for...

  • 3 year old with graves

    July 20, 2016, 1:18 p.m.

    Liz1967 Just one study. Methimazole is not a totally innocuous drug. Agranulocytosis is a bone marrow...

  • Iodine questions

    July 19, 2016, 11:14 p.m.

    When I was first diagnosed with Graves', a well-meaning relative suggested that I take an iodine supplement....

  • Iodine questions

    July 19, 2016, 12:35 p.m.

    Hi and welcome to the forum - you'll find lots of help and good information here. Your question caught my...

  • Iodine questions

    July 19, 2016, 10:47 a.m.

    Hello and welcome, I myself have not been diagnosed with hyperthyroidism. However when tested my thyroid...

  • On Week 12 and very discouraged

    July 19, 2016, 5:37 a.m.

    That is very helpful. I am anxious to talk to the dr today. I am feeling very hyper - woke up STARVING! It is...

  • thyroidectomy: what is the rationale and your experience?

    July 19, 2016, 5:28 a.m.

    1. When I was initially diagnosed with Graves' almost 5 years ago, I was leaning toward thyroidectomy because...

  • On Week 12 and very discouraged

    July 18, 2016, 8:19 p.m.

    Oh, so sorry! That TSH must have you feeling miserable! (I think my mood is much worse when my hormone levels...

  • thyroidectomy: what is the rationale and your experience?

    July 18, 2016, 6:01 p.m.

    I had a total thyroidectomy after six months on methimazole. Best decision I ever made. A good surgeon pretty...

  • thyroidectomy: what is the rationale and your experience?

    July 18, 2016, 9:34 a.m.

    Hi everyone, I was wondering if I could get your thoughts. I have been on methimazole and finding the right...

  • On Week 12 and very discouraged

    July 18, 2016, 7:03 a.m.

    I got my blood tests back and my TSH is 15 times what is supposed to be. This explains the weight. I am off...

  • Iodine questions

    July 15, 2016, 4:54 p.m.

    I was diagnosed with Graves' disease two years ago and was put on atd methimazole 20mg. I have recently...

  • 3 year old with graves

    July 15, 2016, 8:42 a.m.

    Hello again, You already have been told about Dr. Scott Rivkees’ videos Here is the link to one of his videos...

  • 3 year old with graves

    July 13, 2016, 11:54 a.m.

    Massive plasmacytosis with severe marrow suppression induced by methimazole in Graves' disease patients: case...

  • 3 year old with graves

    July 13, 2016, 11:33 a.m.

    Receiving conflicting advice does not make it easy for you to choose the best treatment for your daughter....

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