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Links



Other health organizations for physician referral and helpful information

American Thyroid Association (ATA)  

American Association of Clinical Endocrinologists (AACE)  

American Association of Endocrine Surgeons  

The Endocrine Society  

The Hormone Foundation  

American Autoimmune Related Diseases Associations (AARDA)

The Mayo Clinic - Health Information  

The Cleveland Clinic - Health Information

EUGOGO - European Group on Graves' Orbitopathy

International Thyroid Eye Disease Society

International Thyroid Patient Groups

Thyroid Federation International

The Thyroid Federation International (TFI) was established in Toronto in 1995, and is now registered in Sweden. This group is a network of patient support organizations from many countries, including Europe, North and South America, Australia, and Japan.  Click here for a full listing of members.

Thyroid Cancer:

  • The Light of Life Foundation was established in the spring of 1997 by Joan Shey, a patient herself. The mission of the foundation (a 501(c)(3) non-profit organization) is to improve the quality of life of thyroid cancer patients through continual education of the lay public and the medical community, and by promoting research and development to improve thyroid cancer care. To contact the Light of Life Foundation or Joan Shey, visit their website: Click here.
  • ThyCa: Thyroid Cancer Survivors' Association, a national non-profit 501 C(3) for thyroid cancer survivors, family members, and healthcare professionals. They are dedicated to support, education, and communication for thyroid cancer survivors, their families and friends. For more information from ThyCa, visit their website: Click here.

Patient Advocate Foundation (PAF), a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases. Visit their website: Patient Advocate Foundation.

Government

National Institutes of Health (NIH)

NIH News - Individuals who want to participate in research studies now can connect online with researchers nationwide through the first disease-neutral, volunteer recruitment registry. More details >>

Recent News

Recent Forum Posts

  • Hi - RAI update in UK.

    Oct. 25, 2014, 12:37 a.m.

    Over here on the other side of the pond things went downhill right on the 14th day post RAI. I had sweats,...

  • Question about orbital decompression

    Oct. 24, 2014, 11:25 a.m.

    Hello and welcome! I don't think the exact mechanism that connect smoking and TED is well understood, but it...

  • Question about orbital decompression

    Oct. 23, 2014, 9:54 p.m.

    Hi all, I am ready to have this surgery. I had a catscan and the doctor called me tonight. I had RAI in 1999....

  • Surgery and thyroid levels

    Oct. 23, 2014, 9:18 a.m.

    Hello - I'm more familiar with a risk of hyperthyroidism and thyroid storm associated with surgery, rather...

  • Puzzling Symptoms?

    Oct. 23, 2014, 9:14 a.m.

    Hello - If you know you are feeling hypo symptoms, definitely call your doctor's office and ask for a quicker...

  • Surgery and thyroid levels

    Oct. 22, 2014, 4:25 p.m.

    Hi, My thyroid levels have dropped again. I was feeling so well mid-July through mid-September with both FT4...

  • Puzzling Symptoms?

    Oct. 22, 2014, 3:02 p.m.

    Hi you all, well its been a couple of days.so far im getting improv connypieement with the new glasses,was...

  • Puzzling Symptoms?

    Oct. 20, 2014, 11:12 a.m.

    connypie Hello Everybody, i went for my first vision therapy.but before i paid all that money out of...

  • Graves, Shingles and now this?

    Oct. 20, 2014, 11:03 a.m.

    Oh, no…sorry to hear about this latest development. Wishing you all the best!

  • Puzzling Symptoms?

    Oct. 20, 2014, 10 a.m.

    Hi Connypie, I'm glad your new glasses are helping you. I need new one's too but I have to save up some more...

  • Graves, Shingles and now this?

    Oct. 20, 2014, 9:48 a.m.

    Hey Connypie, You're right! I noticed the other day that if I wait too long to take the Ibuprofen the pain...

  • Puzzling Symptoms?

    Oct. 20, 2014, 8:15 a.m.

    Hello Everybody, i went for my first vision therapy.but before i paid all that money out of pocket,i spoke to...

  • Graves, Shingles and now this?

    Oct. 20, 2014, 7:51 a.m.

    Hi Barbra, yeah isnt life grand!im going trough a bad spell right now too.i hope youre feeling better soon.if...

  • Hyperthyroidism/Graves Disease

    Oct. 19, 2014, 8:40 a.m.

    So glad you found this forum. It has been quite helpful for me. There is a string of posts going by several...

  • Graves, Shingles and now this?

    Oct. 18, 2014, 7:31 a.m.

    Hi Everyone, Quick recap: diagnosed with Graves in 2013, had RAI in July that year, started Levo in August...

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