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Links



Other health organizations for physician referral and helpful information

American Thyroid Association (ATA)  

American Association of Clinical Endocrinologists (AACE)  

American Association of Endocrine Surgeons  

The Endocrine Society  

The Hormone Foundation  

American Autoimmune Related Diseases Associations (AARDA)

The Mayo Clinic - Health Information  

The Cleveland Clinic - Health Information

EUGOGO - European Group on Graves' Orbitopathy

International Thyroid Eye Disease Society

International Thyroid Patient Groups

Thyroid Federation International

The Thyroid Federation International (TFI) was established in Toronto in 1995, and is now registered in Sweden. This group is a network of patient support organizations from many countries, including Europe, North and South America, Australia, and Japan.  Click here for a full listing of members.

Thyroid Cancer:

  • The Light of Life Foundation was established in the spring of 1997 by Joan Shey, a patient herself. The mission of the foundation (a 501(c)(3) non-profit organization) is to improve the quality of life of thyroid cancer patients through continual education of the lay public and the medical community, and by promoting research and development to improve thyroid cancer care. To contact the Light of Life Foundation or Joan Shey, visit their website: Click here.
  • ThyCa: Thyroid Cancer Survivors' Association, a national non-profit 501 C(3) for thyroid cancer survivors, family members, and healthcare professionals. They are dedicated to support, education, and communication for thyroid cancer survivors, their families and friends. For more information from ThyCa, visit their website: Click here.

Patient Advocate Foundation (PAF), a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases. Visit their website: Patient Advocate Foundation.

Government

National Institutes of Health (NIH)

NIH News - Individuals who want to participate in research studies now can connect online with researchers nationwide through the first disease-neutral, volunteer recruitment registry. More details >>

Recent News

Recent Forum Posts

  • YAY! It is working!

    April 16, 2014, 1:36 p.m.

    Wow, great news - definitely keep us posted! And when you go in for that first set of labs, make sure that...

  • Meds interfering with Levothyroxine

    April 16, 2014, 1:34 p.m.

    Thanks for clarifying - hoping that you can get *off* this rollercoaster soon!

  • YAY! It is working!

    April 16, 2014, 12:54 p.m.

    Hi all! I had my RAI almost 3 weeks ago. I haven't gone in for my bloodwork yet, but I feel much better. The...

  • Meds interfering with Levothyroxine

    April 15, 2014, 5:41 p.m.

    Kimberly SueAndHerZoo Since that check up I lowered my dose a slight bit more and was very eager to hear...

  • Post RAI levels and exercise questions

    April 15, 2014, 4:13 p.m.

    Hello and welcome! The primary concern with exercise is to avoid strenuous activity while hyperthyroid....

  • Meds interfering with Levothyroxine

    April 15, 2014, 4:04 p.m.

    SueAndHerZoo Since that check up I lowered my dose a slight bit more and was very eager to hear about my...

  • Communication with MD

    April 15, 2014, 3:57 p.m.

    Hello - This should be a credible resource regarding surgery and hyper/hypothyroidism. Dr. Cooper is on the...

  • New to the group. lab questions?

    April 15, 2014, 3:44 p.m.

    Hi Amber - As Ellen mentioned, we aren't allowed to interpret labs, but make sure that your doc is familiar...

  • Pondering TT

    April 15, 2014, 3:39 p.m.

    scanders What happens to the antibodies with TT? Are they just gone? There is a lot that isn't completely...

  • was surgery a good choice?

    April 15, 2014, 3:29 p.m.

    This is a good resource from the American Association of Endocrine Surgeons: (Note on links: if you click...

  • Well, here goes!

    April 15, 2014, 3:14 p.m.

    AzGravesGuy Waking up from anesthesia I felt like my body had taken a huge exhale. Love this description -...

  • What is your life like after RAI ?

    April 14, 2014, 12:37 a.m.

    Hi Lilly! I had RAI in December of 2013. January and February 2014 I felt pretty awful; I'm pretty sure I was...

  • Post RAI levels and exercise questions

    April 13, 2014, 12:41 p.m.

    So I was diagnosed with Graves a year ago this Tuesday. My levels were about 3x higher than normal. So I was...

  • Meds interfering with Levothyroxine

    April 12, 2014, 9:56 p.m.

    Thanks, Raspberry, but how frustrating, huh? I mean, now that I'm real hyper again, my colitis will probably...

  • Communication with MD

    April 12, 2014, 6:44 p.m.

    I thought that thyroid and eyes were 2 separate processes, but I didn't really know, so I asked. I found...

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