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Links



Other health organizations for physician referral and helpful information

American Thyroid Association (ATA)  

American Association of Clinical Endocrinologists (AACE)  

American Association of Endocrine Surgeons  

The Endocrine Society  

The Hormone Foundation  

American Autoimmune Related Diseases Associations (AARDA)

The Mayo Clinic - Health Information  

The Cleveland Clinic - Health Information

EUGOGO - European Group on Graves' Orbitopathy

International Thyroid Eye Disease Society

International Thyroid Patient Groups

Thyroid Federation International

The Thyroid Federation International (TFI) was established in Toronto in 1995, and is now registered in Sweden. This group is a network of patient support organizations from many countries, including Europe, North and South America, Australia, and Japan.  Click here for a full listing of members.

Thyroid Cancer:

  • The Light of Life Foundation was established in the spring of 1997 by Joan Shey, a patient herself. The mission of the foundation (a 501(c)(3) non-profit organization) is to improve the quality of life of thyroid cancer patients through continual education of the lay public and the medical community, and by promoting research and development to improve thyroid cancer care. To contact the Light of Life Foundation or Joan Shey, visit their website: Click here.
  • ThyCa: Thyroid Cancer Survivors' Association, a national non-profit 501 C(3) for thyroid cancer survivors, family members, and healthcare professionals. They are dedicated to support, education, and communication for thyroid cancer survivors, their families and friends. For more information from ThyCa, visit their website: Click here.

Patient Advocate Foundation (PAF), a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases. Visit their website: Patient Advocate Foundation.

Government

National Institutes of Health (NIH)

NIH News - Individuals who want to participate in research studies now can connect online with researchers nationwide through the first disease-neutral, volunteer recruitment registry. More details >>

Recent News

Recent Forum Posts

  • How about itchy eyelids?

    Sept. 20, 2014, 6:51 a.m.

    Thank you, Christina! Your post is the final piece to this puzzle I needed! I have been working with both...

  • Loss of taste with use of Methimazole

    Sept. 19, 2014, 7:06 p.m.

    I lost my sense of taste while on methimazole too. I only took the meds for about 2 or 3 months before...

  • How about itchy eyelids?

    Sept. 19, 2014, 6:51 p.m.

    Sue, I am one who has experienced this as part of my puffy eye problem. The itching (and dryness) usually...

  • TED makeup tips?

    Sept. 19, 2014, 2:43 p.m.

    Thanks for the warm welcome! Alas, curly hair and bangs aren't a happy match for me. I do believe my glasses...

  • Hi I`m a newbie and would really appreciate some advice.

    Sept. 19, 2014, 4:50 a.m.

    Thanks I`ll keep a close watch on my symptoms. The postie turned up with my letter today, I`m booked into...

  • TED makeup tips?

    Sept. 18, 2014, 10:32 p.m.

    Hi Janet, Might not be helpful, or what you're looking for, but I gave up on the eye makeup, too. The eye...

  • Graves' and TED - Status update

    Sept. 18, 2014, 4:57 p.m.

    Hi all, Thank you for your replies and comments. I spoke too soon on the muscle cramps! Back with a vengeance...

  • TED makeup tips?

    Sept. 18, 2014, 4:42 p.m.

    Hi Janetf, Welcome to the Forum. This a great resource for information and advice from fellow sufferers. As...

  • Hi I`m a newbie and would really appreciate some advice.

    Sept. 18, 2014, 4:24 p.m.

    Hello - In the U.S., T4 testing is not that expensive (and *everything* here is expensive!) so hopefully,...

  • Loss of taste with use of Methimazole

    Sept. 18, 2014, 4:20 p.m.

    Hello - It's the second link in this thread (which is located in the announcements section at the top of the...

  • TED makeup tips?

    Sept. 18, 2014, 4:17 p.m.

    Hello and welcome! Hopefully, others here will chime in with their suggestions. I actually went the complete...

  • I lower my Levo and my TSH drops even MORE!

    Sept. 18, 2014, 3:36 p.m.

    Please take comfort in my discomfort It is good to know we aren't alone or crazy. I wouldn't change my...

  • Trying to find the sweet spot after TT

    Sept. 18, 2014, 3:27 p.m.

    Thanks Kimberly. I believe that is what my endo is trying to tell me. I thought I may have heard that before,...

  • Trying to find the sweet spot after TT

    Sept. 18, 2014, 3:25 p.m.

    Thanks Sue It is hard to make changes since some of us apparently bounce back and forth quite a bit. The...

  • TED makeup tips?

    Sept. 18, 2014, 11:21 a.m.

    New to the forum! Just completed 12 weeks steroid therapy for TED; so far, successful. But my two eyes now...

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