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Links



Other health organizations:

American Thyroid Association (ATA)  

American Association of Clinical Endocrinologists (AACE)  

American Association of Endocrine Surgeons  

The Endocrine Society  

The Hormone Health Network

American Autoimmune Related Diseases Associations (AARDA)

The Mayo Clinic - Health Information  

The Cleveland Clinic - Health Information

EUGOGO - European Group on Graves' Orbitopathy

International Thyroid Eye Disease Society

Red Hot Mamas:  Menopause Education and Support 

National Suicide Prevention Lifeline 

International Association for Suicide Prevention 

International Thyroid Patient Groups

Thyroid Federation International

The Thyroid Federation International (TFI) was established in Toronto in 1995, and is now registered in Sweden. This group is a network of patient support organizations from many countries, including Europe, North and South America, Australia, and Japan.  Click here for a full listing of members.

Thyroid Cancer:

  • The Light of Life Foundation was established in the spring of 1997 by Joan Shey, a patient herself. The mission of the foundation (a 501(c)(3) non-profit organization) is to improve the quality of life of thyroid cancer patients through continual education of the lay public and the medical community, and by promoting research and development to improve thyroid cancer care. To contact the Light of Life Foundation or Joan Shey, visit their website: Click here.
  • ThyCa: Thyroid Cancer Survivors' Association, a national non-profit 501 C(3) for thyroid cancer survivors, family members, and healthcare professionals. They are dedicated to support, education, and communication for thyroid cancer survivors, their families and friends. For more information from ThyCa, visit their website: Click here.

Patient Advocate Foundation (PAF), a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases. Visit their website: Patient Advocate Foundation.

Government

National Institutes of Health (NIH)

NIH News - Individuals who want to participate in research studies now can connect online with researchers nationwide through the first disease-neutral, volunteer recruitment registry. More details >>

Recent News

Recent Forum Posts

  • Bulletin Board Coverage Through July 29th

    July 22, 2015, 7:17 p.m.

    Hi all – Just a quick note that the forum will have limited facilitator coverage until Wednesday, July 29th....

  • Orbital Decompression

    July 21, 2015, 9:30 a.m.

    I had bilateral lateral orbital wall decompressions with some fat removal. At the six week postop visit, my...

  • Orbital Decompression

    July 21, 2015, 6:52 a.m.

    I am about two weeks out from my orbital decompression. The surgery went well and the bruising is almost...

  • New and ?s

    July 17, 2015, 8:48 p.m.

    Thank you Kimberly! I will only be out of the country for about two weeks. And,whenever I begin to go hypo my...

  • New and ?s

    July 16, 2015, 6:26 p.m.

    Hello and welcome! Most patients actually do well after treatment for Graves'…but you aren't seeing...

  • New and ?s

    July 14, 2015, 11:23 p.m.

    Hi All, Sooo glad to have found this group. I was diagnosed late in May with a mild form of Graves and tried...

  • Post RAI - TSH levels too low

    July 12, 2015, 7:15 p.m.

    Hi ccorhn, Great news! So happy for you. Good news reminds us all that there is light at the end of the...

  • Post RAI - TSH levels too low

    July 10, 2015, 5:28 a.m.

    Thanks flora!! Cindy

  • Post RAI - TSH levels too low

    July 9, 2015, 5:31 p.m.

    Hi ccorhn - Although I'm on a different pathway on this journey of ours (the ATD trail), I just have to tell...

  • Post RAI - TSH levels too low

    July 9, 2015, 2:17 p.m.

    Yes, Kimberly he did want to not do RAI, but since he wouldn't treat me with meds, I saw it as the only...

  • Post RAI - TSH levels too low

    July 9, 2015, 11:22 a.m.

    @ccorhn - Thanks for the update! I thought that from your previous post, your doc had wanted you to avoid RAI...

  • Post RAI - TSH levels too low

    July 8, 2015, 4:57 p.m.

    I had a total thyroidectomy because I have the eye disease. In the hands of an experienced surgeon, the...

  • Post RAI - TSH levels too low

    July 8, 2015, 2:10 p.m.

    Had an appointment with my endo yesterday and got some answers finally. I'm not sure it's the correct...

  • Peripheral neuropathy and leg cramps

    July 2, 2015, 3:42 p.m.

    JEH Please post back here if you ever resolve this. I have had exactly the same problems you describe. It...

  • Double Vision

    July 2, 2015, 7:40 a.m.

    SteveS, at 35 prism diopters on one eye, usually the nondominant eye, it cuts your vision pretty much. They...

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