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About GDATF



Message from our Founder

NancyI would like to welcome you to the GDATF website. I believe the information you find here will help you better understand Graves’ disease and other thyroid related illnesses.

Established in 1990 as the National Graves' Disease Foundation, the Graves’ Disease and Thyroid Foundation is the leading source of help and hope for people with Graves’ disease and other thyroid related disorders.  We provide education and support for patients, family members, caregivers, friends and healthcare professionals.

The Foundation is a 501 C(3) tax-exempt non-profit international charitable organization. GDATF has helped thousands of patients better understand the symptoms and treatment programs for Graves' disease.

Diagnosis and treatment of Graves’ disease can cause stress, confusion, and even fear of what the future holds for you and your family. The Graves’ Disease and Thyroid Foundation’s mission is to provide patient services, public education, professional education, and to fund research. Patient programs include a toll-free hotline that provides individual counseling, physician referral, and a bulletin board where anyone can ask questions about the disease. The Graves' Disease and Thyroid Foundation offers support groups that provide educational, psychological and emotional assistance to Graves' patients and family members.

On a personal note, when I was initially diagnosed, I thought Graves’ would be something to be treated, take the medicine, and get on with life. As many of you have discovered, this is NOT always the case. When it quickly became a struggle, I began to look for information, and for people to talk to that had faced the same concerns. When this proved impossible, I began an effort to start this Foundation. With the support of my Endocrinologist and Reconstructive surgeon, I was led to medical experts both nationally and internationally who were most willing to share their expertise in treating Graves’. They have kept us abreast of new research that is searching for the cause and cure for Graves’. Through these years, I have been honored to join hands with many dedicated volunteers who believe that the Foundation can educate, encourage and empower patients and caregivers to improve the quality of their lives.

Please visit our Forum (formerly called the Online Bulletin Board Support Group) where patients ask and respond to others questions on a myriad of subjects. Foundation facilitators monitor these posts and offer valuable insights on the topics discussed. Our Informational Bulletins are now posted on the web under About ==>About Graves' Disease==>Patient Education. You can download and read them online or print them from your personal computer. We are honored to have Dr. Terry Smith serve as Chief Medical & Scientific Officer with his knowledge and expertise on Graves' disease.

The Foundation has embarked on a major fundraising campaign so we can reach the thousands of others seeking help and fund research. Special thanks go to Kathleen and Steve Flynn for their philanthropic support to the Foundation. Recently, their Bell Charitable Foundation awarded us the largest gift ever to provide the seed money to make our dreams a reality.

However, in order to achieve these goals we need the generosity of donors like you! I encourage you to help us make a difference in the lives of those with Graves’ through this Website. Start today by making an online donation. If you become a member you will receive free patient education materials, our newsletter, and discounts at national meetings.

Whether you are living with Graves’ disease yourself, know someone who is, or simply trying to gather useful information, you have a unique opportunity to positively impact the lives of other patients including children affected by Graves’ disease.

The Foundation is expanding patient programs and needs individuals who want to give something back to their community. Are you interested in becoming a GDATF volunteer? Help us increase public awareness in your own community by starting a support group, or organizing a fundraiser for GDATF. Call us at 877-643-3123 or e-mail us at info@ngdf.org for more details.

Together we can make a difference!

Recent News

Recent Forum Posts

  • RAI

    July 28, 2014, 10:47 a.m.

    Hello - Your best source of information should be the specific instructions given by your local clinic, as...

  • newbie with a questiowith

    July 28, 2014, 10:34 a.m.

    Hello - The studies I've seen put the recurrence rate for partial/subtotal thyroidectomy at around 6-7% and...

  • newbie with a questiowith

    July 28, 2014, 9:57 a.m.

    Hello Shirley, Thank you so much for your prompt response. Until I heard it from my doctor, I had never heard...

  • RAI

    July 28, 2014, 9:35 a.m.

    Going in for RAI in about a week. I have 2 boys and am confused about the quarantine. I have heard it is ok...

  • newbie with a questiowith

    July 28, 2014, 9:07 a.m.

    HI, NEWBIE!! Well, that IS interesting! From now on, in the future forever, I suggest getting copy of your...

  • newbie with a questiowith

    July 27, 2014, 2:05 p.m.

    Hello. Diagnosed with Graves about 2.5 years ago. Quite surprised as i had no symptoms and it was really an...

  • Eyelid retraction correction surgery

    July 25, 2014, 5:51 p.m.

    Thanks for the update - so glad to hear that you are doing well! I'm sure the clinic would definitely...

  • Eyelid retraction correction surgery

    July 25, 2014, 3:10 p.m.

    Thank you, Gatorygirly and Kimberly! Yes, I had my eyelid retraction correction surgery done yesterday. It...

  • Peripheral neuropathy and leg cramps

    July 24, 2014, 6:58 p.m.

    JEH, i never thought burning feet and graves go together.i get that occasionally.the tips of my toes will...

  • Other conditions possibly coexsting with Graves'

    July 22, 2014, 6:14 p.m.

    Hello and welcome! This is one of the better pieces that I've seen on Graves'/Hashi's and related autoimmune...

  • Other conditions possibly coexsting with Graves'

    July 22, 2014, 3:53 p.m.

    Hello fellow Gravesters, I was finally diagnosed with Grave's last year, but believe that I have been dealing...

  • Peripheral neuropathy and leg cramps

    July 22, 2014, 10:51 a.m.

    Hello - I do know of one other patient who experienced peripheral neuropathy at the onset of Graves', but I...

  • Is there always weight gain after TT? RAI?

    July 22, 2014, 10:47 a.m.

    JEH PS Do you guys all have to read your posts over to be sure they make sense? I do. Guess it's part of the...

  • Peripheral neuropathy and leg cramps

    July 22, 2014, 9:33 a.m.

    So there are two symptoms I have been dealing with since even before I was diagnosed with GD. The PN causes...

  • Is there always weight gain after TT? RAI?

    July 22, 2014, 9:20 a.m.

    So I went off all my thyroid meds in 2006 at the recommendation of new endo. Heart rate and BP remained...

Questions? Problems? Please contact us at info@ngdf.org or 877-643-3123.

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© 2014 Graves' Disease & Thyroid Foundation