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About GDATF



Message from our Founder

NancyI would like to welcome you to the GDATF website. I believe the information you find here will help you better understand Graves’ disease and other thyroid related illnesses.

Established in 1990 as the National Graves' Disease Foundation, the Graves’ Disease and Thyroid Foundation is the leading source of help and hope for people with Graves’ disease and other thyroid related disorders.  We provide education and support for patients, family members, caregivers, friends and healthcare professionals.

The Foundation is a 501 C(3) tax-exempt non-profit international charitable organization. GDATF has helped thousands of patients better understand the symptoms and treatment programs for Graves' disease.

Diagnosis and treatment of Graves’ disease can cause stress, confusion, and even fear of what the future holds for you and your family. The Graves’ Disease and Thyroid Foundation’s mission is to provide patient services, public education, professional education, and to fund research. Patient programs include a toll-free hotline that provides individual counseling, physician referral, and a bulletin board where anyone can ask questions about the disease. The Graves' Disease and Thyroid Foundation offers support groups that provide educational, psychological and emotional assistance to Graves' patients and family members.

On a personal note, when I was initially diagnosed, I thought Graves’ would be something to be treated, take the medicine, and get on with life. As many of you have discovered, this is NOT always the case. When it quickly became a struggle, I began to look for information, and for people to talk to that had faced the same concerns. When this proved impossible, I began an effort to start this Foundation. With the support of my Endocrinologist and Reconstructive surgeon, I was led to medical experts both nationally and internationally who were most willing to share their expertise in treating Graves’. They have kept us abreast of new research that is searching for the cause and cure for Graves’. Through these years, I have been honored to join hands with many dedicated volunteers who believe that the Foundation can educate, encourage and empower patients and caregivers to improve the quality of their lives.

Please visit our Forum (formerly called the Online Bulletin Board Support Group) where patients ask and respond to others questions on a myriad of subjects. Foundation facilitators monitor these posts and offer valuable insights on the topics discussed. Our Informational Bulletins are now posted on the web under About ==>About Graves' Disease==>Patient Education. You can download and read them online or print them from your personal computer. We are honored to have Dr. Terry Smith serve as Chief Medical & Scientific Officer with his knowledge and expertise on Graves' disease.

The Foundation has embarked on a major fundraising campaign so we can reach the thousands of others seeking help and fund research. Special thanks go to Kathleen and Steve Flynn for their philanthropic support to the Foundation. Recently, their Bell Charitable Foundation awarded us the largest gift ever to provide the seed money to make our dreams a reality.

However, in order to achieve these goals we need the generosity of donors like you! I encourage you to help us make a difference in the lives of those with Graves’ through this Website. Start today by making an online donation. If you become a member you will receive free patient education materials, our newsletter, and discounts at national meetings.

Whether you are living with Graves’ disease yourself, know someone who is, or simply trying to gather useful information, you have a unique opportunity to positively impact the lives of other patients including children affected by Graves’ disease.

The Foundation is expanding patient programs and needs individuals who want to give something back to their community. Are you interested in becoming a GDATF volunteer? Help us increase public awareness in your own community by starting a support group, or organizing a fundraiser for GDATF. Call us at 877-643-3123 or e-mail us at info@ngdf.org for more details.

Together we can make a difference!

Recent News

Recent Forum Posts

  • Hello

    Nov. 21, 2014, 3:37 p.m.

    Hello - Insomnia is definitely a symptom of hyperthyroidism, and I've also heard stories from others who had...

  • Hi - RAI update in UK.

    Nov. 21, 2014, 3:25 p.m.

    joy123 I notice the T4 has raised since the last bloods - is this a good sign? I`ve been experiencing nausea...

  • Hello

    Nov. 21, 2014, 8:09 a.m.

    Hello swithed,ive had graves diagnosed for 20 years.had RAI 20 years ago.i well remember the insomnia.in the...

  • Hello

    Nov. 21, 2014, 7:43 a.m.

    Shirley is right. It is important to find a good surgeon who does a lot of thyroidectomies. Mine was great,...

  • Hello

    Nov. 20, 2014, 8:03 p.m.

    I had surgery. Cause it was the quickest. And it is. Major consideration is that you need a few weeks,...

  • Hello

    Nov. 20, 2014, 12:53 p.m.

    I had no luck with methimazole and eventually got tired of feeling bad, but it is certainly worth trying. If...

  • Update and swollen lymph nodes

    Nov. 20, 2014, 12:20 p.m.

    I had a total thyroidectomy after seven months of messing around with methimazole dosing. Best decision, easy...

  • Hi all! Been a long time! 2.5+ years!

    Nov. 19, 2014, 6:23 p.m.

    Thanks Kimberly. Saw Dr today, go back Fri for blood work. He says I have to take the methimazole twice a...

  • Hello

    Nov. 19, 2014, 6:08 p.m.

    Hi all, Another question - Some things I have read recently have me confused. Some say surgery is still a...

  • Hi all! Been a long time! 2.5+ years!

    Nov. 19, 2014, 9:17 a.m.

    Hello and welcome back! Hopefully, others will chime in on the sleep issues…I would definitely mention...

  • Hi - RAI update in UK.

    Nov. 19, 2014, 4:08 a.m.

    Thanks Kimberly Well looks like the RAI worked….my blood levels from yesterday are TSH 6.00 (0.35-...

  • Hi all! Been a long time! 2.5+ years!

    Nov. 18, 2014, 11:46 p.m.

    And I am much worse! For those that remember, last time I was here, I was getting ready for shoulder surgery...

  • Update and swollen lymph nodes

    Nov. 18, 2014, 5:17 p.m.

    Hi calbears, I'm so sorry you have to ride the roller coaster! I'm pretty sensitive to small changes in the...

  • Update and swollen lymph nodes

    Nov. 18, 2014, 6:38 a.m.

    Sorry for the continued rollercoaster ride! It sounds like you are someone (like me) who is fairly sensitive...

  • Update and swollen lymph nodes

    Nov. 17, 2014, 8:34 p.m.

    Yes, we really don't realize that hyPO is as hellish and awful as hyPER, until we have that experience. I am...

Questions? Problems? Please contact us at info@ngdf.org or 877-643-3123.

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© 2014 Graves' Disease & Thyroid Foundation