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About GDATF



Message from our Founder

NancyI would like to welcome you to the GDATF website. I believe the information you find here will help you better understand Graves’ disease and other thyroid related illnesses.

Established in 1990 as the National Graves' Disease Foundation, the Graves’ Disease and Thyroid Foundation is the leading source of help and hope for people with Graves’ disease and other thyroid related disorders.  We provide education and support for patients, family members, caregivers, friends and healthcare professionals.

The Foundation is a 501 C(3) tax-exempt non-profit international charitable organization. GDATF has helped thousands of patients better understand the symptoms and treatment programs for Graves' disease.

Diagnosis and treatment of Graves’ disease can cause stress, confusion, and even fear of what the future holds for you and your family. The Graves’ Disease and Thyroid Foundation’s mission is to provide patient services, public education, professional education, and to fund research. Patient programs include a toll-free hotline that provides individual counseling, physician referral, and a bulletin board where anyone can ask questions about the disease. The Graves' Disease and Thyroid Foundation offers support groups that provide educational, psychological and emotional assistance to Graves' patients and family members.

On a personal note, when I was initially diagnosed, I thought Graves’ would be something to be treated, take the medicine, and get on with life. As many of you have discovered, this is NOT always the case. When it quickly became a struggle, I began to look for information, and for people to talk to that had faced the same concerns. When this proved impossible, I began an effort to start this Foundation. With the support of my Endocrinologist and Reconstructive surgeon, I was led to medical experts both nationally and internationally who were most willing to share their expertise in treating Graves’. They have kept us abreast of new research that is searching for the cause and cure for Graves’. Through these years, I have been honored to join hands with many dedicated volunteers who believe that the Foundation can educate, encourage and empower patients and caregivers to improve the quality of their lives.

Please visit our Forum (formerly called the Online Bulletin Board Support Group) where patients ask and respond to others questions on a myriad of subjects. Foundation facilitators monitor these posts and offer valuable insights on the topics discussed. Our Informational Bulletins are now posted on the web under About ==>About Graves' Disease==>Patient Education. You can download and read them online or print them from your personal computer. We are honored to have Dr. Terry Smith serve as Chief Medical & Scientific Officer with his knowledge and expertise on Graves' disease.

The Foundation has embarked on a major fundraising campaign so we can reach the thousands of others seeking help and fund research. Special thanks go to Kathleen and Steve Flynn for their philanthropic support to the Foundation. Recently, their Bell Charitable Foundation awarded us the largest gift ever to provide the seed money to make our dreams a reality.

However, in order to achieve these goals we need the generosity of donors like you! I encourage you to help us make a difference in the lives of those with Graves’ through this Website. Start today by making an online donation. If you become a member you will receive free patient education materials, our newsletter, and discounts at national meetings.

Whether you are living with Graves’ disease yourself, know someone who is, or simply trying to gather useful information, you have a unique opportunity to positively impact the lives of other patients including children affected by Graves’ disease.

The Foundation is expanding patient programs and needs individuals who want to give something back to their community. Are you interested in becoming a GDATF volunteer? Help us increase public awareness in your own community by starting a support group, or organizing a fundraiser for GDATF. Call us at 877-643-3123 or e-mail us at info@ngdf.org for more details.

Together we can make a difference!

Recent News

Recent Forum Posts

  • Bulletin Board Coverage Through July 29th

    July 22, 2015, 7:17 p.m.

    Hi all – Just a quick note that the forum will have limited facilitator coverage until Wednesday, July 29th....

  • Orbital Decompression

    July 21, 2015, 9:30 a.m.

    I had bilateral lateral orbital wall decompressions with some fat removal. At the six week postop visit, my...

  • Orbital Decompression

    July 21, 2015, 6:52 a.m.

    I am about two weeks out from my orbital decompression. The surgery went well and the bruising is almost...

  • New and ?s

    July 17, 2015, 8:48 p.m.

    Thank you Kimberly! I will only be out of the country for about two weeks. And,whenever I begin to go hypo my...

  • New and ?s

    July 16, 2015, 6:26 p.m.

    Hello and welcome! Most patients actually do well after treatment for Graves'…but you aren't seeing...

  • New and ?s

    July 14, 2015, 11:23 p.m.

    Hi All, Sooo glad to have found this group. I was diagnosed late in May with a mild form of Graves and tried...

  • Post RAI - TSH levels too low

    July 12, 2015, 7:15 p.m.

    Hi ccorhn, Great news! So happy for you. Good news reminds us all that there is light at the end of the...

  • Post RAI - TSH levels too low

    July 10, 2015, 5:28 a.m.

    Thanks flora!! Cindy

  • Post RAI - TSH levels too low

    July 9, 2015, 5:31 p.m.

    Hi ccorhn - Although I'm on a different pathway on this journey of ours (the ATD trail), I just have to tell...

  • Post RAI - TSH levels too low

    July 9, 2015, 2:17 p.m.

    Yes, Kimberly he did want to not do RAI, but since he wouldn't treat me with meds, I saw it as the only...

  • Post RAI - TSH levels too low

    July 9, 2015, 11:22 a.m.

    @ccorhn - Thanks for the update! I thought that from your previous post, your doc had wanted you to avoid RAI...

  • Post RAI - TSH levels too low

    July 8, 2015, 4:57 p.m.

    I had a total thyroidectomy because I have the eye disease. In the hands of an experienced surgeon, the...

  • Post RAI - TSH levels too low

    July 8, 2015, 2:10 p.m.

    Had an appointment with my endo yesterday and got some answers finally. I'm not sure it's the correct...

  • Peripheral neuropathy and leg cramps

    July 2, 2015, 3:42 p.m.

    JEH Please post back here if you ever resolve this. I have had exactly the same problems you describe. It...

  • Double Vision

    July 2, 2015, 7:40 a.m.

    SteveS, at 35 prism diopters on one eye, usually the nondominant eye, it cuts your vision pretty much. They...

Questions? Problems? Please contact us at info@ngdf.org or 877-643-3123.

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© 2015 Graves' Disease & Thyroid Foundation